What to ask at results appointment?

5 weeks ago I had surgery to remove a 14cm complex cyst from my ovary (along with most of the ovary). They also took biopsies of the omentum and pelvic fluid. At the same time I had a hysteroscopy which identified and removed a polyp in the womb and also biopsies taken of thickened womb lining. Prior to surgery they hadn't been able to determine whether or not the cyst was cancerous as there were some suspicious features but also some that were more reassuring.

I have now had an appointment come through for Monday with gynaecology oncology, which I think is for getting the results of all the biopsies etc. I'm assuming (hoping!) that this is labelled as this simply because everything up until now has been linked in with that until cancer is ruled out. I am a bit worried though that I have been given a face-to-face appointment, rather than a phone call/letter which I wonder if it may have been had all been ok. (It seems almost a waste of an appointment at their end if it is simply to say everything is fine if that makes sense)

Am trying to be positive and not panic just yet. What I'd like help with though is some advice on what sort of things I should be asking at the appointment, particularly if it is bad news. I want to be prepared and have things written down as I think if it is cancer I may well not be thinking clearly enough to ask what I perhaps need to. Any advice or experiences would be much appreciated. 

If it is cancerous, is it likely that the appointment will also discuss treatment etc, or would that be separate after the initial telling me appointment? 

Thanks in advance x 

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  • Hi Sunflowergirl l would take a list of questions and a pen and paper to write down what they say. Taking someone with you helps as you can talk about what’s been said,  as we all hear different things from a conversation. 

    It’s easy to hear something and switch off, before hearing everything from the consultant. 
    lve been through gynaecology oncology, l had complex ovarian cysts, the operation took 4 1/2 hours due to extensive adhesions. Fortunately my biopsies were benign, but it was 5 weeks before I was given the results! 
    Do take care l hope everything is fine 

    Susie

  • Thank you Dave and Alfie for your thoughtful messages.


    I wanted to give you an update on how it went today - not great news unfortunately. It has come back as being ovarian cancer - a less common type apparently, called granulosa cell cancer. 

    Have got some big decisions to make about the extent of surgery to have - the 'standard' treatment would be radical hysterectomy, omentum removal, lymph node removal etc. However, as I am only 32 and have no children, there is also the option of a less drastic approach of just taking the ovary - this carries risk though of it  an increased change of the cancer coming back/not totally got rid of. So lots to digest and think about! 

    Sunflowergirl x

  • I am so sorry that the news was so bad.
    Did they tell you what stage you’ve reached? 
    That’s a hard decision to have to make for anyone. 
    All I can add is please don’t rush into making a decision until you’ve had chance to ask lots of questions and are happy you’ve received all the answers.

    Good luck and best wishes
    Dave

  • Thanks Dave. 

    They provisionally think it is Stage 1C . 

    Thanks for the advice - I was thinking, your previous message with a draft of myths would definitely be beneficial to others I'm sure if you did post it separately

    sfg x 

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