Breast shrinking worries

So I just got a red flag referral to the breast clinic yesterday and am feeling a bit overwhelmed. I always thought breast cancer would cause a breast to appear larger, but since discovering a lump last week my breast seems to have shrunk with noticeably less breast tissue in it. The GP really didn't react at all - I think she was trying to keep me from worrying, and didn't address the issue of the breast shrinking, although did notice it was smaller (it isn't usually). I guess I'm just wondering if anyone else has had just one breast shrink and wondering if it means anything?

I'm also worried as she said that referrals are taking a while, so although I'm red flagged (2ww) I might not hear from the hospital until after Christmas and it could be 6 weeks before I'm seen! I'm trying so hard not to overthink it, but waking at 2am and not getting back to sleep until about 5 when I have to get up for work at 7 is draining and I don't know if I can maintain that for 6 weeks!

Words of advice or shared experiences would be most welcome :)

Parents Reply Children
  • Thanks so much Lara :) I hope things went ok with your scan. Was it hard to get back onto NHS after the initial investigations or did you decide to stay private? Xx

  • I stayed private lovely after initially paying first appointment claimed the rest on my private medical insurance had 2 operations and radiotherapy through that highly recommended was treated like a princess in all fairness x 

  • Amazing to be able to do it style! I've heard they really look after you in the private sector. We lived in the States for years and the care was incredible, albeit pricey enough to make you weep! Unfortunately we don't have health insurance here so wouldn't be able to afford to go private for the whole journey if it leads that way. I'm still hoping it's benign or a cyst or something though...positive thoughts only right now :)

    How are you doing after all the treatment? My mum had breast cancer and the radiation really took it out of her but not sure if that is everyone's experience xx

  • I’m feeling amazing now did have a bit of tiredness after radio but my diagnosis was July 22 so a while ago now xx 

    yes private was good but nhs is equally as good if only the wait times were better x 

  • So glad your feeling great now. It's the positive stories on here that have helped my anxiety the most so thank you so much for sharing them :) xx

    Most recent waitlist times were just posted and say 3 weeks for red flag referrals (anything suspected of cancer). Hopefully that is until I'm seen and not just when I get my letter! Xx

  • Just to add, weirdly enough one of my best friends is now waiting for a referral for the same breast clinic as me as of today. She has a 2cm lump she can move about with some discomfort on one side. obviously very anxious but after swapping videos looks like similar thing. thinks it's fibroadenoma 

  • Crazy to be going through that at the same time! The more I think about it I am convincing myself that my lump is a fibroadenoma too. Not sure what is causing the shrinkage though, unless it's just tissue being pulled by the lump or by the muscle underneath. Hope your friend's appointment comes through quickly for her! Xx

  • it is. I'm taking it as a sign! I'm not sure either, I don't think ive heard of shrinkage before. fibroadenomas  do seem to be common in our age group and thank you xx

  • Hi there, 

    just wondering how you got on with this? I was diagnosed with fibroadenomas a few years ago and now noticed a massive shrinkage in my left B :( trying to get another appointment to get it checked out. Did you get any answers?xx 

  • Hi, for me it turned out to be a mix of cysts, and a fibroadenoma. The shrinking they thought was just age (I'm 40) and me being quite petite so any shrinkage/loss of breast tissue is much more obvious. I  was terrified so totally get how you're feeling! Definitely get it checked out though, if just to put your mind at ease. Fingers crossed it's a happy outcome for you too xx