Hi, hope I’ve posted this to the right group. Not sure if I’m looking for advice, reassurance or just need to get my feelings out somewhere. I’m female and in my mid 30’s. About a year ago, I noticed I have frothy urine quite often so I visited my GP who did a kidney blood test for eGFR and an albumin urine test. My eGFR was ‘ok’ but not great and was 80mmol/L. The albumin test came back negative. So I just assumed everything was ok as no further testing was mentioned. The foamy urine has continued and sometimes covers most of the toilet bowl. After doing a little bit of research on Google, I’m now terrified I have Myeloma because if the protein isn’t albumin I can only see that it could be ‘Bence Jones’. I’ve seen a couple of articles online and in Myeloma forums that say frothy/foamy urine was an early sign. I’ve been back to my GP and they are now ordering a 24 hour test and looking for other proteins. In the meantime, I am absolutely petrified. I feel ok in myself most of the time but I am now so stressed I just feel as though I’m on the verge of tears all the time and I daren’t let my family know, especially when I don’t have any diagnosis for anything yet. I guess what I would like to ask if anybody reads this is what were your first signs of Myeloma? Also, does anyone know if proteinuria not caused from albumin could be anything else other than Myeloma? I know I shouldn’t jump to conclusions but I’m so scared and I’m also very angry at my GP for not following anything up when the albumin was negative in my urine sample. Thanks in advance for any information, advice or just for taking the time to read this. The only other thing I have is a bit of shoulder pain which I’ve had for a couple of years but it’s just like random twinges that are mild rather than painful rather that severe pain so I doubt it’s connected?
Anyway, thanks again x