Worried and in the dark

Can anyone tell me is it normal to wait what feels so long. 

I noticed a lump right side of neck so went to my GP on 9th Nov the referred for bloods and a scan which was on the 14th this was a horrible experience was told there and then it was abnormal have I been to ENT I need a biopsy. GP only referred for a scan, I called the GP back they said they will wait for my bloods on 22nd before referring me. My bloods are back I seen them on portal so called my GP to chase why referral for biopsy had not been done yesterday so the set a task which was completed today. This appointment is now not until 13th December. I feel so anxious. On my record it states suspected cancer but no one has physically discussed this with me. Any advice would be appreciated. 

  • Hi Jay 

    Waiting for tests and results is so challenging and worrying. It sounds as if you are doing a great job though keeping on top of things. 
    Reading ‘suspected cancer’  on the portal must have made you so anxious.
    Maybe you can discuss this with your GP tell him/her that you have read this and you are worried … ask them to explain it.

    Plus you could call one of the Cancer help lines I have found them to be incredibly helpful and reassuring. No problem is too big or too small I’ve always come off the phone feeling so much better after speaking to them. Just verbalising what you are thinking lightens the load and you can be more informed so less worry. 

    Having had these tests myself the process is longer than you would ideally like. I found it useful to ask for timescales like …’after my biopsy how long will it take to get my results back’ this really helped me. 

    I’m sure like I had … you have lots of questions. I found it really helped to write down my questions and concerns so I could discuss these with my GP and the cancer helpline. I found this way I could manage and cope with things better during appointments and the horrible waiting game. You will be surprised just by writing things down how it really helps destress things. 

    I know this may sound impossible but I found keeping really busy with lots of distractions so helped … meeting up with friends and talking about how you feel is such a comfort and trying to keep a normal schedule as you can helps too. 

    It’s so good you have reached out and remember that there are so many people on your side who understand exactly what you are going through 

    Wishing you all the luck Jay  

  • Thank you for your response. I did read your reply in the day apologies I've not responded sooner.

    I may call one of the help lines. The GP have kinda said not to worry (easier said than done) and they won't know anymore until my biopsy results. I will be asking how long my biopsy results will take. 

    I'm sticking to routine work, children general day to day to keep busy. Had a rubbish weekend feel this weekend the lump is putting pressure in my throat if I tilt/move a certain direction. 

    Keep trying to keep positive until I have the test and get the results I guess there is not much more I can do. I will make a note of any questions. 

    Thank you again for responding.

    Jay

  • Just an update I had the camera up my nose to check the throat lump on the 13th I thought I was going for biopsy they then said the biopsy would take place via 2ww urgent. Luckily notated 2 weeks and had the biopsy Mon 18th just a waiting game now for results. Hopefully I will get them soon. Unfortunately now off work just can't concentrate.

  • Hi Jay, 

    Good to hear that things are moving forward for you. 
    It’s only natural that you feel the way you do as it’s an anxious time for you and your loved ones. 

    Like you my head was all over the place but I found that just taking small steps and taking one day at a time really helped to get me through so just focusing on the day ahead…  otherwise I was just exhausting myself with worry facing my fears every moment.
    I kept telling myself that all the worry in the world won’t change the outcome. 

    I tried hard to give my head some ‘time out’. It’s not easy but I did eventually manage it some of the time. 

    I found a talk by Tara Brach called Awaking Your Fearless Heart changed my head and thoughts overnight … you can find her on YouTube or Insight Timer app  ( which is totally free). 

     We all have our own coping mechanisms but it’s worth a listen to it’s very gentle and reassuring and it gave me focus and some reassurance somehow. 

    Take care xx 

  • Thanks for you reply. Yeah I have kind of work up thinking it is what it and I'm one step closer to finding out. 

    I will have a look at Tara's talk thank you.

    I'm setting myself tasks throughout the day to complete so I'm not just sat all day. 

    Jay x

  • You are finding a way to get through this and taking some positive moves. 

    Give yourself a big hug ! 

    Take care 

    Jane x 

  • Thank you. My results are back but my appointment is not until next week to get them on Thursday.

    Why so long this is awful x

  • Hi Jay,

    I'm so sorry to hear that you are still waiting for your results, as I know what a stressful wait this is.

    I shall be thinking of you next Thursday and keeping my fingers crossed that nothing untoward is found.

     Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx