Hi everyone,
I’m hoping to gain some support and someone who can relate to what I’m going through.
Let’s start from the beginning…..
In my early 20’s I started with an itchy vulva. At first I managed as I thought I had thrush but the itch wouldn’t go away. I started visiting the GP on a weekly basis. I was diagnosed with everything from thrush, BV, skin conditions, dry vulva, eczema of the vulva, you name it I was diagnosed with it. Not a single treatment helped, I would cry every single day from the amount of itchiness and pain I was in. I use to sit in the bath for hours just to ease the pain.
I eventually gave up with the GP and visited the sexual health clinic at the hospital. I saw the most amazing doctor and he referred me to his friend in gynaecology. I waited 6 months for an appointment and after 5 long and very miserable years I finally had a diagnosis. I was diagnosed at the age of 26 with VIN II and VIN III. No one could understand what was triggering the disease. I have used aldara twice (which has awful side effects), steroid creams countless times, 8 biopsy’s and surgery. Each and every time the cells return. For the last 6 years I have been seen every 3 months by my gynaecologist. Nobody can find a cure for me and it’s completely depressing. Today I have been referred for vulva laser ablation. I haven’t had this treatment before and I was excited but now I’m worried it won’t work, like nothing else in the past has.
im hoping somebody else has been through this and offer me advice.
thank you
