Hey guys, I’ll try to keep this as short as possible but basically I’m in my early 20s and have pre-existing medical conditions (not cancer) that I’ve got a surgical feeding tube for. Since having it placed I’ve had so many infections around the site of my tube and every time we swab it it’s always the same bacteria which was sensitive to 3 different antibiotics which we’ve been using to treat it. Early-mid October it became infected and was put on antibiotics  but after still felt infected which was then confirmed by another swab. Fast forward to now where I’ve just finished my fourth back to back course and again it hasn’t seemed to have gone despite being treated with the correct antibiotics.

Over this time I’ve not been feeling well in myself but not in an infection way or had any fevers and would say it’s more that I’m extremely exhausted, really bad headaches, constant itchiness, being really out of breath and really bad joint pain. I had bloods a few days ago which showed that my CRP levels were really elevated at 66 which isn’t far off what they were when I had sepsis a while ago but have also noticed that I have a loads of swollen and hard lymph nodes on my neck and collarbone to the point that you can see one bulging out of my neck when I’m talking.

I never normally worry over stuff like this as I always just tell myself I’m being dramatic but this just doesn’t feel right and have had so many weird symptoms and problems in the last couple of months that I’ve not had answers for. In the past few days I’ve also constantly been getting a burning and tingly/numb feeling in my mouth and episodes where I’ll suddenly get tingling at the back of my head along with a wave of coldness in that area. I know that a lot of my symptoms are typical text book symptoms of lymphoma and just really worried because of the swollen & hard lymph nodes, how violently itchy I am, infection that won’t go away, feeling really run down and exhausted, joint and back pain, high CRP, pressure migraines that often go down my face and neck and just feeling so achy in general. 

I’m so sorry that this has been really long, I’m going back to the GP again in the morning but if anyone has any advice or opinions on this I’d be really grateful as I just constantly seem to get myself into a mindset that nothing is wrong and that everything’s just in my head for some reason so getting someone else’s perspective would be great. Thank you