Sick with worry about breast again

I’m hoping to vent and get some much needed hand holding at the moment from you lovely people. I am sick with worry at the moment and finding it hard to distract myself.

Last year I had breast burning pain and an inverted nipple which i immediately attended GP for and was referred to breast clinic. In March 22 I was seen at clinic and had examinations and a mammogram but was given the all clear and told I had non cyclical pain as well as a cluster of small cysts like bubble wrap causing a hard area of nodular tissue. I was so relieved and sent on my way with anti inflammatory gel. Fast forward to June 22 and went back to GP as pain was relentless and my nipple was also sore and seemed to be pulling in more. So referred back to clinic where I was examined again in August 22 and then had ultrasound of breast at top lumpy area again, Radiologist was lovely and showed me cysts on screen but she did not examine my full breast as the ANP had no concerns about how nipple looked. Furthermore I had my screening mammogram in September 22 which also came back clear. 
I have been back to my GP several times since with constant pain and a numb arm and my nipple is still painful and retracted particularly if I get cold as well as a darker red colour than other side. 
After several further examinations and prescriptions for nerve pain, pain relief etc I pushed for another referral which was then assessed as routine as I had two clear mammograms last year.
My “routine” breast clinic appointment is next week and I am so unwell with the worry of it all now. Not sure how much more of this I can take mentally. The what ifs are torturing me! 
sorry for ranting but I can’t share with my family as it is too much. I just feel so sad with everything now x

Parents
  • Hi Pauline,

    Welcome back. I am so sorry to hear that your pain hasn't settled down since last year. It is unusual to have breast pain with cancer. I am glad to hear that you have persevered and have another appointment at the clinic next week. I wonder if your cysts have got bigger and this may be what is causing the pain? These can be drained if they get too large. I don't know whether or not the doctors would be willing to carry out a biopsy. It might be worth asking, as it sounds as if this is the only thing that could convince you that your tissue is benign.

    I sincerely hope that you get some answers as to the cause of your pain and how to control it this time. Please keep in touch and let us know how you get on. As you know, we are always here for you.

    Kind regards,

    Jolamine xx

  • Hi Jolamine, your support last year was so much appreciated so thank you for your lovely reply again. I can’t believe I am still in this awful position today and how much my life has actually been almost on hold since my first referral in Feb 22. The pain is constant now and the change to my nipple is alarming although it was only slightly retracted last year it certainly seems to have gotten considerably worse. Someone told me that this could be ageing but why only on one side and why the pain. I feel at breaking point now so just hope I can manage to hold it together until my appointment on Tuesday. I’ve literally just had an NHS reminder  via text so good to go now. 
    thanks again for your kindness and I’ll keep you updated next week x 

Reply
  • Hi Jolamine, your support last year was so much appreciated so thank you for your lovely reply again. I can’t believe I am still in this awful position today and how much my life has actually been almost on hold since my first referral in Feb 22. The pain is constant now and the change to my nipple is alarming although it was only slightly retracted last year it certainly seems to have gotten considerably worse. Someone told me that this could be ageing but why only on one side and why the pain. I feel at breaking point now so just hope I can manage to hold it together until my appointment on Tuesday. I’ve literally just had an NHS reminder  via text so good to go now. 
    thanks again for your kindness and I’ll keep you updated next week x 

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