Lung nodule

Hi

i haven’t posted here for a long time as I have been trying to get my life back on track

To cut a long story short after seeing my doctor for over two years for a cut that had turned into a large fungating growth I finally got to see a dermatologist who arranged for it to be removed

Results were not good a 10mm nodular melanoma with a mitosis of 8.  Wle and slnb carried out told all was clear and stage was 2c. Due to the delay at the hospital for a skin graft on my foot I was advised to let it self heal

Pet scans with contrast were carried out and I was told they were clear only one wobble on the brain scan which they said was ok

I had a ct scan with contrast in August and finally got the results on Tuesday that the nodule in my lung had grown to 11mm

Excuse me what nodule? She tried to gloss over it saying they were sure they told me that it was detected over 2 years ago on my first pet scan and it measured 5mm  It was the first I had heard of it   Surely as I had breast cancer 4 years previously and hadn’t been signed off they should have said something 

The scan has now been referred to the lung mdt team for further consideration

As you can imagine I feel like I have been hit by a bus  I tried to ask what the implications were and she said that it could be nothing or mets from the melanoma or breast cancer or a new lung cancer  

My melanoma was a really nasty one and I feel that they should have told me or offered me treatment when they found the original nodule and my fear I was stage iv from the start is overwhelming me

Sorry to ramble on but I was so let down by my gp the first thing my cancer nurse said to me was don’t worry we are here for you now 

Julie

Parents
  • Welcome back to the forum Julie although I'm really sorry to hear what has happened.

    Understandably you must be contending with a lot of emotions right now but we are here for you and I'm sure it won't be long until you receive some support and advice from our members.

    If you'd like to discuss this further with one of our cancer nurses you can do so on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They are very insightful and will do all they can to help you at this time.

    We're thinking of you Julie and will have our fingers crossed for a good outcome from the MDT meeting.

    Kind regards,

    Steph, Cancer Chat Moderator

  • Hi Steph 

    Thank you for your reply I really appreciate it

    Im hoping to hear soon my daughter is having her first baby in a few weeks so I would like to have a clearer idea of what’s happening before then

    Julie

  • Dog lover 

    if you can go private , you will get answers straight away not worth the stress good luck xx 

  • I don't think many would be able to cope with what you're going through ,it sounds horrendous ,I hope the antidepressants help take away some of your stress and worry ,there's always someone on here to talk to  and I hope all goes well for you during tests etc .

  • I do hope you get news soon. The waiting is terrible.

  • I am looking into getting a second opinion but hopefully something will happen soon

  • Thank you for your kind words  

    its just the uncertainty I struggle with but hopefully I will have answers soon

  • Hopefully you will hear soon 

    if not go on the phone to a private clinic you will probably have answers in days x 

  • Well I chased up my appointment with the nurse Last week and she said she would email the hospital and find out what was happening. 
    As I still hadn’t heard anything I rang the hospital who was meant to carry out the scan and they said they haven’t received a referral and there was no record of me on the system.

    I also checked my NHS app and there are no referrals on there for me.

    I contacted my nurse and she is on leave. I received a reply from another one of the nurses and when I asked for a copy of my referral she said I couldn’t have one due to patient confidentiality 

    hopefully I will get some answers tomorrow 

  • Offline in reply to laraj Unpublished Reply

    Well I chased up my appointment with the nurse Last week and she said she would email the hospital and find out what was happening. 
    As I still hadn’t heard anything I rang the hospital who was meant to carry out the scan and they said they haven’t received a referral and there was no record of me on the system.

    I also checked my NHS app and there are no referrals on there for me.

    I contacted my nurse and she is on leave. I received a reply from another one of the nurses and when I asked for a copy of my referral she said I couldn’t have one due to patient confidentiality 

    hopefully I will get some answers tomorrow 

  • Offline in reply to laraj Unpublished Reply

    Well I chased up my appointment with the nurse Last week and she said she would email the hospital and find out what was happening. 
    As I still hadn’t heard anything I rang the hospital who was meant to carry out the scan and they said they haven’t received a referral and there was no record of me on the system.

    I also checked my NHS app and there are no referrals on there for me.

    I contacted my nurse and she is on leave. I received a reply from another one of the nurses and when I asked for a copy of my referral she said I couldn’t have one due to patient confidentiality 

    hopefully I will get some answers tomorrow 

Reply
  • Offline in reply to laraj Unpublished Reply

    Well I chased up my appointment with the nurse Last week and she said she would email the hospital and find out what was happening. 
    As I still hadn’t heard anything I rang the hospital who was meant to carry out the scan and they said they haven’t received a referral and there was no record of me on the system.

    I also checked my NHS app and there are no referrals on there for me.

    I contacted my nurse and she is on leave. I received a reply from another one of the nurses and when I asked for a copy of my referral she said I couldn’t have one due to patient confidentiality 

    hopefully I will get some answers tomorrow 

Children
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