I have endometriosis and rectal bleeding. GP sent me for a colonoscopy and I told the nurses how severe my pelvic pain is due to this illness. I asked them so many times to give me proper sedation and they promised it will be done. They also said the process would not be painful but only a bit uncomfortable.
I had my husband accompanying me for the consent process before the procedure because my experience of hospitals is in general very negative as no body understands the complexity of endometriosis. In front of my husband they told me they will give me conscious sedation as well as entonox (gas and air). However, they did not give me proper sedation or pain relief at all and I was screaming and crying. They gave me gas and air and said to me: "just breathe deep and keep going on gas and air." I could not for the life of me ask them to stop because this invasive procedure was so fast and painful I only cried and screamed while holding my mouth on to the gas and air mouth piece.
The person who was carrying the procedure kept shaking and pulling and pushing the scope so fast I could feel all my inside. No one told me during consent that they would be shaking the scope like that. If I had known I would have not consented. I have had previous operations for my endometriosis and my naval area is since sore as it seems the trocar port on my belly button has left endometriosis adhesions there that is why I feel the pain at this spot particularly bad. At a few points a nurse pressed on my belly so hard that I thought my belly button was gooing to open and at 2 points they also turned me on my tummy and pressed on my back. It was completely out of order. I screamed so loud but it seemed like no one cared. They just kept saying I was doing ok.
I want to just make sure people are aware that colonoscopy can be very painful if you have endometriosis and if they dont give you some strong pain medication. I am home in bed 2 days now taking morphine and paracetamol suppositiries round the clock. I seriously would not recommend this procedure to anyone and I would say ask for ct scan or other imaging instead if you think you may suffer.
Never in my life have I felt so traumatised and I honestly hope this could get out of my memory because this is not something I would want to remember. I have been crying for 2 days on and off and feel so shaky although I am generally a strong person. To say how I am disgusted is an understatement. I do not trust doctors and nurses anymore.