Hi Steve

I so hope I have same result as you...positive FIT score but no real symptoms..no change in loo habits but occasionally blood due to I think piles..freaking out and Dr Google making me worse!!!I've read 90 per cent of positive results not cancer but of course worry  I am in the 9%..your story is a positive one very much so...kind regards Helen

Hi Helen, yes Google is the worst thing to look on for making you paranoid! I was convinced I had it. I'm sure it's 9 out of 10 colonoscopy checks turn out to be other things. 

The blood I had occasionally was bright red so lower down the bowel. I know what it is now though and the doctor told me there and then. I think if the blood is darker or tar coloured then it's possibly something more sinister? Mine only seemed to happen after multiple bowel movements and by multiple I mean literally 5 times in 1 day and always after I'd consumed a lot of alcohol. Makes me sound like an alcoholic which I really am not lol.

You need to remember though that the fit test isn't a cancer test. There can be multiple places blood can come from.

I hope you have a good outcome. 

Yes I worry about anything, even if there’s nothing to worry about which in the last 5 years always something to make me anxious.

The drinks you have the day before, like my husband he has his today and the procedures tomorrow at 9.30, I think it’s the same for all the different ones.  Xx

Yes I bet you have had quite a few worries.. fingers crossed news tomorrow is not something to worry about.. ah I see re drinks..just as long as I'm near a loo I think is main thing

You have the drink the day before your appointment although mine was still affecting me first thing in the morning. 

You'll be fine once your there as they really look after you and make you feel relaxed. 

Tbh the score looks like it could be irrelevant anyway as I've seen someone on here with a result of a thousand and he was fine,no cancer. But then I'm no doctor. 

I know exactly how your feeling and no amount of people saying calm down wlll make any difference to how you are but you need to remember that the chances of you having cancer are very slim.

Thank you Steve, that sounds OK to have drink at home the day before..

I've seen some posts about scores and they're quite confusingly.. I'm assuming that higher scores indicate cancer but I've not been able to find a scoring scale to show what they might mean.

Yes you're totally right, nothing will make any difference until I find out..I keep going over in my head all the main symptoms such as losing weight, pains in stomach, diarrhoea and or constipation none of which i have..and altho I do get little bits of blood every few months I think this is piles..but with this hidden blood I guess that won't be down to piles..really appreciate your replies...

The threshold for them to get you checked out is 10,mine was 15 so over but on the low side. But then I've seen some people with scores into the high hundreds and it's not been cancer.

I actually made myself ill with the worry. I had diarrhoea and I didn't want to eat much.

It's just a guessing game and you'll not know for definite until you actually go in.

We’re back from the hospital and all went well, as my husband’s wasn’t a colonoscopy we have to wait for results about 10 days. It was over in 20 minutes. As I said before it was a virtual CTC scan so couldn’t take any biopsy even if they found something, not sure what will happen if something was seen. Good luck Helen Xx

Fingers crossed everything is ok for him.

Glad all went well Sue for your husband..fingers crossed results are good xx

Just spoken to my GP who says the letter to them just said it was a positive result and didn't give a score..so probably good to not know..she said to try to not worry, things get picked up early but big majority don't have anything to worry about..she says she only knows 2 from the surgery where they found very early cancer and both doing very well.. I too am making myself ill worrying and appetite gone totally and my stomach all over the place too!! 

She's right. Most people are fine. My gp said the same tbh. 

I'm sure I read that it's one of the most treatable cancers? 

I got to the point where I resorted to taking more of medication for my back just to chill me out and relax me as I was flapping that bad. Sad really! You just want to go to sleep, wake up and the nightmare of the worry to be gone.

She's right. Most people are fine. My gp said the same tbh. 

I'm sure I read that it's one of the most treatable cancers? 

I got to the point where I resorted to taking more of medication for my back just to chill me out and relax me as I was flapping that bad. Sad really! You just want to go to sleep, wake up and the nightmare of the worry to be gone.

yeah i have read about how treatable it is...doesn't make me feel any better though - i have been using meds i was prescribed for a bad back which are Valium but called something else as i'm totally flapping and totally stressing every single minute of the day.... constantly on my mind..yes i agree i just want to get the worry gone as is horrible..

I heard a few years ago everyone got sent for the colonoscopy as part of routine checks at 55 so there was none of this worrying and waiting...

When do you have your colonoscopy?  Sorry I can't remember now if you've said when.

Hi...screening appointment this Friday then it said colonoscopy would be scheduled for 2 weeks after that..will ask if any chance it could be sooner..

What’s a screening appointment Helen, hope my husband hasn’t missed something out. He had a CT scan on the 26 Aug still waiting for it to be read, then his bowel thing on the 11th, we have to wait for results of that as it was a virtual one. Good luck Helen xx

Hi sue, the letter I had says it's carried out by a nursing practitioner over the phone to ask you questions I think relating to suitability for a colonoscopy, for me to ask questions and I think they ask questions about lifestyle and health and then they explain what happens at a colonoscopy...so I'm guessing that this wouldn't be the same for your husband perhaps? Thank you..getting more worried by the day xx

Ahh yes, he saw the surgeon for some reason, maybe as the doctor had done the FIT test, I remember you saying now lol. I just want some results, everything seems to take ages considering this started early July under the 2 week wait and here we are in September. At least when you have your colonoscopy you should find out the same day if they see anything, maybe not what it is but you’ll have an idea. My husband doesn’t worry, I think I worry for us both .Fingers crossed for you and us. 
Hi Steve, I hope things are going good for you now, get another holiday booked X

That's such a long time to wait and worry..and is good your husband doesn't worry...only thing I suppose if taking so long might not be anything they are that worried about...all my fingers crossed for you x

Thanks! Funnily enough I was looking at Vienna yesterday!!