Hi, this is probably going to be a bit of a rant. I'm tired and scared and I've had no answers to symptoms which began last November. 

Last November, I started getting a burning feeling in my left ovary and bizarre peachy-orange coloured discharge. I skipped a period and immediately went to the doctor.

I had a blood test and a cervical smear. Smear came back normal. Blood test came back normal including CA-125, except for a level of prolactin which was around three times what it should be. A second blood test was scheduled. The prolactin was down to slightly above average.
I was referred for a transvaginal ultrasound. Results showed what looked like a very small uterine polyp. Ovaries looked fine. I was told that the next step would be a small camera to look around. (This was around February).
Then, a letter came from the hospital- they decided not to look with a camera and instead wanted one more blood test. It came back normal (apparently.) The whole time, I was still burning, still producing this odd discharge. 

My symptoms died away towards the middle of March and I put it down to an odd hormonal glitch. The hospital never contacted me. 

In July, the peach discharge came back and within a week, it was actual blood. Not terrifyingly huge amounts but still, it was very unusual. The burning is back. I went to the doctor and was told I should have been seen by a gynaecologist in the hospital. I have been referred again and it has been expedited... 
I've been on Utovlan to stop the bleeding but I'm out of pills now and I've grown a spare tyre under my belly button and my upper pubic area has doubled in size. You can see the swelling through my clothes at times. (The swelling comes and goes). 

In the meantime, I've had vaginal swabs and a full panel of STI tests. All came back clear. I have been sterilised so it cannot be pregnancy related. 


I'm supposed to be flying to see my long term long distance partner in December. We've only had one week together out of the last 8 months and nobody will insure me until I have a diagnosis. It seems like we've ruled out everything, yet I'm still bleeding and burning, I bought flights when I had no symptoms, my life is now on hold and I feel so hopeless and frustrated. 

I have a phone call scheduled with the doctor on Monday, another CA-125 and prolactin blood test on the 16th. 


I'm so tired, so scared and every time a test comes back negative it no longer feels like a relief- it just feels like something is being missed.