Hello Tequila2, 

I am so sorry that you've had to spend all this money on this private consultation and scans. It's good you then managed to see an NHS consultant for further guidance but poor you finding yourself back to square 1 not knowing when you will be seen. At least you got things moving earlier and now know a little bit more about what the next steps will be but this is a really frustrating situation for you and one sadly many members of our community will be able to relate to. I hope that you will hear from others who've experienced this before and that they will share their story with you. 

I hope that they will have clinics on again soon - it's so tough having to find yourself in a situation where all you can do is wait and each day of waiting can feel so long. I really hope that they sort out these issues and that you will be seen soon and have your biopsy and hysteroscopy in the next few weeks. There are helpful tips on this page to help you cope while waiting for important news which I hope will help you get through each day. 

We're thinking of you during this difficult time and I keep everything crossed for you that you will get an appointment sorted very soon. 

Best wishes, 

Lucie, Cancer Chat Moderator

I’m so sorry to hear this , it’s absolutely disgusting ! I would contact your local news team and your local paper x 

Hi Lucie Thank you so much for your words of support. I've been coping OK but 10 weeks is now taking its toll on me. Especially as I know I need the biopsy now. I'll read the information you've shared. X

I have thought about thus but right now my family don't know. I really don't want them to worry so it's not an option

It's just so frustrating and I feel completely trapped by the situation. I've decided I'm going to ring the booking clerk every day from tomorrow.

I’m so sorry you’re dealing with this , especially as you have decided not to tell your family . I really hope that you get some answers soon . It’s bad enough dealing with this without the added hassle of waiting to be seen . Xx

Hi Tequola2,

Hope you're further ahead with your checks and managed to book the next appointment. Hope you have good news.

Your situation is similar to mine. I'm 39yld I've had an ultrasound a year ago with 15mm thinking post cycle that no one had bothered to let me know that follow up checks had been recommended.

I've been almost everymonth to gp in the last year and had blood tests done due to being severely anemic and showing PCOS.

Finally saw a gynecologist in November suspecting endometriosis. She booked ultrasound and MRI and prescribed progesterone provera for 3 months and she would see me agsin in 3 months.

I did ultrasound first week of December showing 18.2mm thinking on my 14th day of bleeding. Did MRI 18th December awaiting results.

Been ringing gyno almost daily and not heard anything back of the next steps so I went privately.

I have a hysteroscopy booked for 8th of January under general anastasia.

I'm worried of bad news and sad that NHS has hit the bottom.

I'm so sorry you're going through this. I have to say the situation I found myself in nearly broke me and I ended up sick from work.

I eventually got my hysteroscopy on the nhs in September- over 3 months from my referral date and escalated only because I'd paid for a private consultation and scan.

The procedure was done without pain relief and was  not pleasant at all but I knew it needed doing

It took another 8 weeks for results

Thankfully my condition is not malignant and I'm now on the waiting list for a hysterectomy . I am in pain daily and have no idea when the op will be.

I think the nhs are trying their very best but in some areas the service is just broken

Hope you take some reassurance from my results... everyone I think suspected I had cancer but the hrt I was on seems to have caused the thickening. I'm now trying to recover from the emotional stress it caused

Fingers crossed for your results xx

Oh great news thanks a lot for the response and I'm hoping and praying that mine is just endometriosis. The NHS gynecologist suspected DIE (deep inflirtated endometriosis) which will need a total hysterectomy but I can deal with anything rather than cancer. My dad is going through bowel cancer treatment and is doing well but don't think my family will cope with another bad news so I haven't shared anything with them.

Agree NHS are doing their best but they are on their knees. I've read a few stories like yours and mine which is sad.

All the best and thanks again 

I think not being able to share puts so much pressure on you doesn't it.

Sadly my dad died of bowel cancer and I knew I couldn't worry my family with my referrall so I just had to keep going. Being able to share here was so helpful.

When you can just focus on anything other than the outcome. Even temporary distractions are good.

Wishing you all the best xx

So sorry to hear about your dad.

I'll try and distract myself not long now until the tests.

I'll post in here as soon as I hear to help other readers.

Thanks and all the best to you too xx