Waiting for biopsy results

Hello

I have been lurking here for a couple of weeks, not wanting to write anything down as it made it feel more real!  I al so sorry to those of you in the same position, or worse, than me.

I found a breast lump a few weeks ago, - well the dog did when he stood directly on it and I nearly jumped out of the bed it hurt so much!! i hadn’t noticed it before.

I got referred within the 2ww period and that’s when it all started looking a bit serious. At the ultrasound the radiologist said I had a ‘space invader’  which is quite funny I suppose. When I asked if it could be a cyst or a fibrodema she said it wasn’t either. She said not to worry they would know more when they got the biopsy results and deal with it. I had a look at the screen and it’s a hideous looking spikey thing, like a paint splat.  The radiologist was really lovely and I do feel she was preparing me for bad news, as was the nurse afterwards. The ‘c’ word was never used which was comforting though. 

I only have an 8 day wait for the results so they are next Thursday 17th. I veer between feeling fine and feeling almost sick with worry. I have things organised every day up until then and hopefully the time will go quickly. 

My husband seems ok with it but I have been very matter of fact, pretending I really am not that concerned when actually I am. 

Being in contact with others on here  in my situation will help I think as it’s so hard for anyone to understand how awful the waiting is!!!! Thanks for reading this X 

  • Oh dear Casmo I am so sorry to hear your news was also bad. I don’t need any more scans as nodes looked clear on ultrasound and they will do the sentinel node biopsy during the op and whip more out if needed. They don’t know if I will need chemo yet, if I do it will be after surgery so hopefully not.  Lots of hugs to you too xxx

  • Yes I’m sure it does . I would describe breast cancer as a roller coaster ride , so much to take it , treatment plans , telling everyone , the c word ….. it’s pants but we”ll all get through it , fingers crossed and sending my best wishes to you. Xx

  • Hi there, hope you have had good news. I had a machine biopsy done on 5 areas of calcification. After 2 mammograms and an ultrasound. Now been told after all that, the tests ate inconclusive, si have to now go for another biopsy this one requiring signed consent and BP check before and after. 

    Why on earth are the samples not taken correctly the first time? They took 5 samples! it is bad enough having it done once, my breast has only just stopped hurting as much and now I have to have it done again!!

    Having your breast squeezed incredibly painfully between 2 plates is not good, surely all that is extra trauma to the breast, let alone a 'staple gun ' method of excision. 

    I am gutted to have to have it all done again. Surely in today's technology a blood test should be able to suffice? 

    Appointment in 8 days and can't sleep, I start a new job soon, and renting new house. Praying for negative results as I have no way of paying bill's alone.  Sorry for moan,, don't usually feel sorry for myself, it's just having to have it done again that's upsetting. X

  • Oh you poor thing Nb. Perhaps the sites were tricky to get at although you would think they would get the biopsy right! 5 biopsy’s must have left you very sore. I wonder what sort of biopsy they are doing that requires consent? it is really good though that they are being so thorough. Perhaps you can ring the breast nurses and ask them about this next biopsy? Then you can read up on it and understand more what’s happening.   Also have you got any indication of what they think? My radiologist at the ultra sound told me- without telling me- it was bad news. I am glad she did as I had a week to prepare myself while I waited for the results. Thinking of you xxx

  • Thank you for your kind reply. I have no idea why they are doing another version of a biopsy. I assume they  did not take a big enough sample. I will take your advice and ring the centre, the nurses ate very kind and considerate there. I think I just was so shocked to hear I had to have another biopsy that I didn't ask the right questions. I hope you get the care and support you need. Thinking of you too xxx

  • Yes deffo give them a call. They will help you understand what’s going on. I agree it’s just so hard initially that you just accept what they say as you are in shock  and only afterwards do you wonder what in earth is going on!! If you have a phone that records I would suggest recording your phone call with them or using the otter app which records voice and turns it into notes Xxx

  • Thanks Alys01 that's a good shout. I will record the conversation. The weird bit that stuck with me was when she said about the second procedure she said how do you feel about that? As if I had a choice and now I am left wondering if there was a better option like I said such as a blood test maybe. xxx

  • Hopefully all will be one clear when you phone. With mine I also need to phone as I didn’t get the diagnosis given to me written down- am going to ask for that so I know exactly what the scores are etc. Perhaps you can do the same? Xxx

  • Hi Alys,

    I am so sorry to hear that you got the news that you didn't want, but I'm glad to hear that you are still able to go on holiday. Telling people is never easy, but you will find that the more positive you can be about beating this, the better people will take the news. It sounds as if you have got a good consultant for the job, so I hope that all goes well.

    Please keep in touch and remember, that we are always here for you.

    Kind regards,

    Jolamine xx