Hi I had mri on 3rd July and have had to chase information. I called the secretary in the 3rd week who said a letter was on the way but that I was to be discussed at an MDT meeting and they only meet on Fridays. With the strikes I have rang again to find out when I can expect to hear and now I've been informed consultant is on 2 weeks leave and the difficulties of putting a mdt together. I was initially sent on a 2ww refral with suspected ovarian cancer. My GPS have been great and talked me though the mri results in the absence of consultant appointment, which shows previous endometriosis and the mass on my ovaries as doubled in size from initial scan and still can't be determined as cancer or not. however as I've still not heard from consultant I've spoken to his  secretary who said he hasn't marked me as urgent for the MDT meeting so I'm now 8 weeks in from initial scan  with no clue as to when I might be seen again. Feeling very upset  disappointed and let down by the lack of communication to manage waiting time expectations. 

So in answer to you question Fallmare, yes! 

Hi june06

I finally got my results on Friday 7.5 weeks.

Absolutely awful. 

I'm emailing pals today because I know nothing of how many cysts I have. What they are called. How dilated is my duct now. 

Yes communication is just horrendous. 

Makes you even more anxious .

But if he's marked it non urgent I'd presume that's a good thing x

Glad you have results and can move forward. 

I feel I am losing confidence in the system now. I've been reading about the 28 day FDS, where you should have some communication to either have diagnosis or rule it out and I have neither. I'm in the same situation as so many , to be at square one seven weeks in. 

I am positive however the lack of communication increases anxiety so much and have coped well for 6 weeks in anticipation of a diagnosis but with no deadline in sight I feel it harder to keep the skip in my step I had before. 

Good luck with pals. Be interested to know how you get on. 

I’m afraid 2015 was the last time the majority of Trusts routinely met cancer waiting time targets. The government did try to remove them at one stage arguing they were outdated - though when in opposition they highlighted every (then rare) breach by individual Trusts.

Hi Fallmare,

I am delighted to hear that you have at long last got your results. As Dave said, there should be contingencies for holiday cover, as they are a regular occurrence. What was the outcome? Is it just cysts? - I do hope so.

Kind regards,

Jolamine xx

Hi jolamine 

Thankyou for your nice message. 

So all the letter said was no changes, repeat scan in a year.

The thing is I'm going to request a copy of the report because last year the letter said CYSTS  but this letter said CYST. 

So what is it?

I feel I should know what they are and how big?

Because being a severe anxiety sufferer and its on my notes 7 5 weeks is awful xx

Hi Fallmare,

I am delighted that it is good news, but surely your consultant could have put you out of your misery sooner? It is only natural that you want to know more about your cyst/cysts, so please continue to pursue this until you get some answers and let us know how you get on. 

I hope that you feel a little more reassured and relaxed now that you've got some sort of result. As you know, we're always here for you.

Kind regards,

Jolamine xx

Thanks so much. It really is a huge relief. 

But yes he could of, I've been so worried. 

But your right I will pursue it..

I know your there and it means alot xx

That’s great news, though I can understand why you need confirmation about which report is accurate.

Thanks so much davek.. so happy.

I do need to find out so I'll make moves next week to get them.

Hope all is well with you 

Thanks so much davek.. so happy.

I do need to find out so I'll make moves next week to get them.

Hope all is well with you