Hello All
Thought I’d share my experience which seems to be never ending….
so, few years back I went to A&E with suspected appendicitis due to cramps / pain under belly button, ovary area. I was sent for a transvaginal scan which I was not prepared for at all! (this was in height of lockdown and will forever be known as ‘lockdown mess’ as I very politely pre warned the guy about to see it.) Anyway I had raised white blood cells (never known why to this day) and found something in my womb. Appointment came through for hysteroscopy, I was like can’t be any worse than a smear, surely?! I’m sure my cervix is upside down, inside out…. Never pain free! How wrong was I…. It was bloody horrendous, turned out I had 2 fibroids and they took cells from it. I would say this was like a period cramp x50! Results came back normal on these cells.
Last year probably for a good 6 9 months I noticed my periods were not right! I’ve always been like clockwork, heavy and 7 days but here I was bleeding, spotting in between my cycle to the point I felt like I was bleeding all the time! My partner made a GP appointment as I just put it down to hormones etc. My Gp was excellent and put me on fast track….CA125 Blood test came back normal, another transvaginal scan, ultrasound - operation veet’ was in full force! Found something on the scans, sent for another hysteroscopy. Yes, I cried like a baby even before anything went in as per last experience. Removed polyp, chucked in Mirena coil which I felt kinda pressured to have legs wide open, bleeding and in pain. That was November 6th.
Went for coil check up at my Gp about 13 weeks later and she asked if I had any results? and I needed to chase it up. Phoned consultant secretary and she was a bit gobsmacked. She was brilliant though and got me an update, turned out consultant who did my procedure had left the trust a my results were being looked into by another consultant and were sent to some women’s lab. The she called to say phone appointment set up with this doctor (another man! Why do men do this profession?!) so after 16 weeks I got my r esults over the phone - Atypical polpoidal adenomyoma which is basically a rare uterine tumour , pre cancer cells. He asked me if I had plans for children, got children etc. I turned 39 in May. Then sai d he would send through a repeat biopsy for May…. Literally my lady bits can’t take much more!
The repeat biopsy was 4 Weeks ago yesterday and was told I would have results 2-4 weeks. Seriously us wo men are just expected to take these barbaric procedures with the aid of Paracetemol…. Which I didn’t take before hand! The only thing I’m not happy about is the complete lack of information you get from these consultants, I feel kind of in limbo, from what I have googled it points toward hysterectomy. Which leaves you questioning the children thing as I don’t have any. Etc. The one thing I did get out of him is if results are abnormal, then goes to MDT. If normal then lucky me has another pipelle biopsy in 6 months time.
Apologies for the life story. Anyone going through similar who fancies a chat, I’m here. I would also like to say I think all you ladies going through similar with the waiting game and obviously who are diagnosed with this awful disease are truly amazing and brave. Love to you all. Jen. Xxxxx oh yeah and 9 months with the coil I’m still having periods. Woop woop!
