Hodgkins Lymphoma Symptoms

Hi everyone!

I’m a little bit concerned about my body at the minute….a bit of back story. I would say throughout late 2021 - late 2022, I had constant itching on my legs which left no rash but was much worse at night, I was going through a very stressful period mid 2021 and got diagnosed with generalised anxiety disorder so put my itchiness down as anxiety. In October 2022 I really wasn’t feeling well in myself, very fatigued so had blood work done there was one abnormality for my liver got retested and everything was fine.

This year I’ve been feeling much better in myself after coming off the depo injection in March. The itchiness no longer bothers me either. A few months ago I noticed when washing my face a lump on the right side of my jaw (believe it’s the submental lymph node), I put it down to my wisdom teeth coming through however I went to the dentist and they said there was no sign of infection and my wisdom teeth has come through perfectly normal. I then went to my Drs at the start of June to get it looked over, the nurse prac couldn’t find the lymph node and even said you don’t get lymph nodes over your jaw they are under it. However she did understand my concern and referred me for an ultrasound anyways …. I had my ultrasound a couple weeks ago and they confirmed it was an enlarged lymph node but it looked perfectly normal, she told me some people can live with lymph nodes for a very long time and they not cause any bother.

This put my mind at ease, however, a few days ago I have found another swollen lymph node on the right side of my groin, I can feel two nodules and they can be moved around (same as the one in my jaw).

I’m not rushing back to the Drs as they did tell me the one in my jaw is fine and I’ve only noticed this one in my groin a few days ago….if i still have it by the end of this month I will be going back. I haven’t lost any weight, I do sometimes get itchy legs again at night and had a couple of night sweats in the last week. I did have glandular fever when I was 15 (8 years ago) and mumps when I was 20.

I just wanted to see what experiences other people had with their symptoms, did you have itchiness well before you diagnosis that went away? How many swollen lymph nodes did you have? How long did you have the swollen lymph nodes for before diagnosis etc?

My parents and partner think I’m crazy and a hypochondriac but I just really don’t think something is right!

  • Hi

    Im 19 and have been experiencing a similar thing! i’ve been to the doctors today and they are sending me for a blood test in a couple of weeks, my itching started around a month ago but seems to have calmed down slightly, but now i feel like there is a pressure in my neck and i’m not sure if it’s slightly swollen as well as having hot flashes with a temperature. The clinician i saw said at first she thought it was bigger on one side but she’s not sure which hasn’t really helped with the worrying. 

    My family seem to think i’m worrying too much about it, but it really plays on my mind that i might have something. I think it’s hard to know when to be concerned and when not to be. 

    Although you said you don’t want to go rushing back to the doctors, if you can get an appointment to put your mind at ease i don’t think it’d hurt (better to be on the safe side), but then again you it’s more than likely nothing to be concerned about if you’ve been checked before so i’d try not to think about it too much. 

    Hope you feel better about it soon!