Hi,  this is my first time posting, your message caught my attention as your symptoms and journey have been the same for me.

I was told once reassured all symptoms would go away, kept saying I was young and fit and there's nothing sinister going on, well they didn't, I am 37 years old female and been trying to get to the bottom of all this now for 2 1/2 years, 

Unfortunately I have gradually become more unwell and admitted to hosp in Jan with suspected stroke, they by chance found a congenital hole on heart during my stay, they put alot of my symptoms down to that and I have been refered now for closure 

They also found a old stroke and enlarged heart, all other blood tests borderline, nothing jumping out tested for many auto immune conditions. 

So a few weeks ago I finally got my gastro appointment which I was refered for 3 years ago,,, good old Covid delay! Reson for referal acid reflux, throat horseness, pain in stomache, heartburn, all gotten worse and worse, chased referal on many occasions told massive backlog and just have to wait

Endoscopy last week, found several areas of concern in my stomache , biopsies taken, put on 2 week pathway, assingned a specialist nurse who is lovely, just waiting for my results.

I don't want to say this would be your outcome I just want to say in your gut if you feel something isn't right please don't let them fob you off, I've been made to feel like I'm crazy and everything exists in my head, while the whole time im trying to juggle full time work and bringing up my two girls but feeling so unwell and exhausted. I literally cried when the consultant who admitted me in Jan was finally listening and taking me seriously. 

Please continue to follow up until you find out what's causing your symptoms. 

I'm staying positive, however realistic, I'll update once results are in, I have a feeling I may need to use this platform to have a little rant here and there lol best wishes to all who are going through this *** Crap at the mo!

#positivethinking x 

Thanks for replying Netball85!

It's both sad and comforting to know there are others going through a similar struggle.

I am so sorry you are struggling to get anywhere. Glad there is someone taking notice now though. It seems to me that consultants and hospital doctors are so much more willing to listen and try to resolve. GP surgeries are the main barrier, just my experience!

I had spoken with my doctor about cardiac concerns as I have also experienced palpitations and sweats now and again. 

Can I ask, did you ever have CT or MRI scans? Earlier this year I had a CT of chest/abdo and that came back clear too, hence why they won't investigate further. 

I am glad to hear they eventually found something to look into. If you remember, I'd be keen to know the outcome of your biopsy. Im new here too but it seems a good place to vent and seek support. 
 

I appreciate your encouragement. My gran passed with Cancer 7 years ago and she always told us to trust our instinct as hers was picked up far too late. 

I too will post an update on my journey. You keep your chin up and focus on you and your little angels. Whatever the outcome, whatever the journey, we just never know how long we have. 
 

Thanks again for taking the time to reply. 
 

Best,

L