Hi, 

I have been in a similar situation to you. 

I have had a couple of endometrial biopsies along with other tests. The only conversation amongst the tests I've had with consultant was 1 consultant appointment and consultant stressed the need for surgery but not sure at that point what surgery as still undergoing investigations. 

Fast track a couple of weeks and various tests etc I had a letter from MDT Gynae Oncology, I was not even told it had gone to oncology, and MDT recommends Total Abdominal Hysterectomy with Bilateral removal of ovaries and fallopian tubes, a repeat CA125 and Omental biopsy. My letter also says I've been added to the waiting list even though this has not been discussed with me.

I have no idea what any of my results are apart from ultrasound which has picked up a suspected endometrioma and that CT has confirmed this has grown another 2cm (now 8cm). I also know my CA125 several weeks ago was high at 141. 

Apart from that I'm pretty much in the dark and not had a lot communicated to me.

Do you have a follow up with your consultant? 

I have a follow up tomorrow which I'm absolutely bricking and trying to write down questions but a bit mind blank.

Hope you get some answers/correspondence soon and a follow up with consultant, I would of thought that was needed at least.

Take care

Hi, 

I have been in a similar situation to you. 

I have had a couple of endometrial biopsies along with other tests. The only conversation amongst the tests I've had with consultant was 1 consultant appointment and consultant stressed the need for surgery but not sure at that point what surgery as still undergoing investigations. 

Fast track a couple of weeks and various tests etc I had a letter from MDT Gynae Oncology, I was not even told it had gone to oncology, and MDT recommends Total Abdominal Hysterectomy with Bilateral removal of ovaries and fallopian tubes, a repeat CA125 and Omental biopsy. My letter also says I've been added to the waiting list even though this has not been discussed with me.

I have no idea what any of my results are apart from ultrasound which has picked up a suspected endometrioma and that CT has confirmed this has grown another 2cm (now 8cm). I also know my CA125 several weeks ago was high at 141. 

Apart from that I'm pretty much in the dark and not had a lot communicated to me.

Do you have a follow up with your consultant? 

I have a follow up tomorrow which I'm absolutely bricking and trying to write down questions but a bit mind blank.

Hope you get some answers/correspondence soon and a follow up with consultant, I would of thought that was needed at least.

Take care

Its all so overwhelming and confusing isnt it? No follow up appointment as yet - hoping isomething comes soon, or the GP can clarify it for me xx

I hope your appointment goes ok, writing questions down is a great idea x

I've just had a phone call with a face to face appointment next Tuesday, so I know now it's definitely bad news, as all my other results have been by letter...dreading it and I'm so upset now 

Try to stay positive lovely, I know its easier said than done x

Thankyou for your reply. 

I hope you get a response from your GP soon. Knowing something no matter how little is better than not knowing anything at all x

Kicked up fuss, Secretary got nurse to ring me and although not totally good news it’s not as bad as it could be..

atypical endometrial hyperplasia, so pre cancerous cells found in one or more polyp..

Appointment will discuss treatment, possible hysterectomy, maybe coil to stop things getting worse if hysterectomy not possible at current time due to being a fat cow…

And breathe…….

I'm so pleased you got some answers xx