Fast growing ovarian dermoid cysts

Hi everyone,

I'm currently feeling anxious about my situation. 

I had three large ovarian dermoid cysts removed 2 years ago. They were discovered during an emergency C section and removed immediately after my baby was delivered. They were 7 and 8cms and I had 2 on the left ovary and one on the right. I didn't know I had these cysts until then, however I know for sure that I didn't have them before I was pregnant, because I had IVF treatment which involved much scrutiny and detailed scans of my ovaries, leading to egg collection from individual follicles. This means my dermoid cysts must have grown from nothing to 7 and 8cms over the course of 9 months. The cysts were biopsied and were benign.

Recently I have been experiencing abdominal pain and bleeding mid cycle, so my GP referred me for ultrasound/transvaginal scans. It turns out I now have a 3cm mass on the left side and an unconfirmed mass on the other. (Unconfirmed because they struggled to get a clear image of the right due to gas around the ovary). They said it was possibly a large follicle but couldn't be sure and I will require an MRI). The 3cm cyst was described as a likely to be a dermoid cyst again. Next week I am to have blood tests to check my CA125 levels which will determine how much of a priority I am in terms of treatment options.

I am feeling anxious because I previously understood that following surgery, dermoids were unlikely to return. I also know the usual growth rate of a dermoid is very slow (under 2mms per year). Last time these grew very quickly and I'm worried this is happening again. Could the fast growth be an indication of something more sinister? 

Has anyone else had a similar experience? Was this linked to a cancer diagnosis? Or if not, were you advised to have your ovaries removed as a preventative measure?

I am worrying and catastrophising about this. I'm 40 years old.

 

 

 

  • A very warm welcome to the forum Moomilly although I'm sorry to hear about the masses that have been found and for how anxious this is making you feel.

    I know I can't take the worry away but I hope it helps to know that many members of our community have contended with dermoid cysts so you are not alone and hopefully you will receive some support and advice from them soon.

    If you'd like to discuss any of this with one of our nurses, you can do so on 0808 800 4040, Monday - Friday (except bank holidays) between 9a.m - 5p.m. They're very understanding and will do all they can to answer your questions and help put your mind at ease at this time.

    We're thinking of you Moomilly and we'll have our fingers crossed your next set of tests will show these masses are no cause for concern.

    Kind regards,

    Steph, Cancer Chat Moderator