Anxious wait now for results and plan

The MDT meeting took place this morning. I had a phone call from hospital following that a few hours ago advising that I'm booked in to see consultant on 1st June to discuss MDT outcome, all results from tests and plan.

Unfortunately the lady on the phone could not tell me anything as she was just booking appointments  

9 days then finally hopefully I can have a plan in mind and work towards putting this all behind me, I just wish they could have been more informative on the phone. It's all been incredibly stressful.

  • Hi Indi

    I hope all went well for you today - my experience has closely tracked that of yours. I have my follow up next Wednesday, brought forward by a couple of weeks, which cranked up the anxiety 

  • Hi

    Thanks for your reply. 

    Signed consent form for total hysterectomy and removal of both ovaries and fallopian tubes. If I'm honest I'm absolutely bricking it, I've only had surgery once before for a dog bite.

    I'm dreading the 12 week recovery as I'm an active person. 

    They have decides to put me on 2 week wait urgent path as they think there may be cancer within the cyst as my CA125 is still raised but they carnt find a reason as to why after ruling out a lot through various scans and tests etc. 

    Hopefully you will have a plan soon and some answers. That was the biggest thing for me, they were doing all these tests etc but not telling me anything really in the last 7 or 8 weeks till today. 

    I just need to wait for a surgery date now. I hate staying in hospitals as well and the thought of a blood transfusion if needed during op makes me feel ill. I'm not a medical wimp it's just the thought of someone else's blood inside me. 

    I just need to get on with it and stay positive that nothing will go wrong x

  • Thank you for the reply - Wishing you all the best for your surgery x