Hi Indi,

Thanks for the updates. I suppose the main positive to take away is that you're well underway with investigations even though it is more waiting. I know we talked about how frustrating it is to not have plans of all possibilities discussed. I'd be just as apprehensive as you and will be when the times comes in a few weeks for my turn. Have they said you need to wait long for results? 

I spoke with my doctors and asked why I wasn't put on the 2ww and the nurse told me it's because the doctor didn't think it necessary. So I asked what the actual result was for the CA125 and they couldn't tell me, I've had to sign  a form to get it all linked to my NHS app. So I'm not sure what to make of it all.

I've calmed down a little now, I'm sleeping better but my anxiety is still high and regularly feel light headed and palpitations. And I still feel like the pain has got worse. I also had a small blood clot in my urine yesterday so I fell into the rabbit hole of researching bladder cancer last night.

OK

So you need to keep busy in order to stay calm and focused. 

When did you have a CA125 done? As I was not told result of mine till a week later after I chased for it.

A good idea to get a link to your NHS app this has some very useful info on it. 

Just hang in there till your scan, there is not a lot of point worrying about the unknown, easy to say believe me I know.

I dont know a lot about urine related issues as I've never had a urine infection or any issues with my bladder fortunately.

I have no idea how long till I get results I've just been told to expect a letter for a follow up with consultant.

I had my bloods done exactly 1 week ago and they were reported the next day, so it was very fast, but my scan isn't for another 5 weeks.

I should think that because they're quite invasive tests that you should hear pretty soon. I work in a Vets and when we send off histopathology and cytology to an external last it's normally like 5 working days, but it's probably all very different.

I have a holiday booked in 2 weeks so just focusing on that and it's helping.

We're you sedated at all for the tests today? How ate you feeling this evening, are you comfortable?

I wasn't sedated for the tests today. I don't want to cause worry and everyone is different but it really was painful today. I did take pain relief beforehand but to no effect. They were going to stop at one point as the pain was pretty unbearable but I honestly kept telling myself, I don't want to go through this again just do what you have to do.

I had the same procedure 2 years ago and not as painful as today. The consultant offered the removal of the polyp at a later date under GA but I've had so much done in a few weeks I just am at tge point of enough is enough. 

The consultant is now convinced I have endometriosis which I've never had a formal diagnosis to but everything is pointing that way.

I've had 2 children naturally with no pain relief, I have a high pain threshold so was not expecting the pain to be as bad today. 

I'm OK this evening, very cramps like pains, to be expected and every so often some sharper pains. Very bloated but glad that investigation is done and out of the way.

That's very brave of you, you're a better woman than me. I've had 3 bad miscarriages and no live births and they were the most painful thing so I imagine I'll struggle.

But it's a means to an end like you said, it's done now and maybe I hope you can relax a little somehow.

You are strong and brave as well with what you have gone through. I can only imagine as I have not experienced it myself.

I'm not a better woman than you I think equal with different struggles that we have learned to cope with.

You'll be OK, hopefully whatever you need won't be so invasive but if it is, take each day and each test as they come. Ultimately its to find a diagnosis to come up with a treatment plan, whether that's medicine or surgery etc to better the outcome to move on and enjoy life.

I have my CT booked in on Sunday so hopefully they will have results from that for the MDT on Tuesday and I can finally get a plan of action...we will see

Thanks for checking on me. I had my CT scan yesterday. They done a scan of my chest ?not sure why, and my pelvis with contrast dye. The radiology staff were lovely but they could not disclose anything, I will just have to wait till I hear of the MDT tomorrow.

I feel some relief in that all my tests/examinations are complete now I believe. 

I have been having some dizzy spells over the last few days, could be stress related I guess but could be that I suffer with anaemia although my last test a few weeks ago was borderline normal but I don't know if the 5 bottles of blood, 2 biopsies and a hysteroscopy have had an impact on my iron levels.

How long do you have left till your scan? 

I'm fortunate in that I don't suffer physical symptoms from anxiety but I'm sorry that you are having difficulty in that area. Hopefully things will calm soon.

Yes I bet that must be a relief for you. I think they do the chest as standard if there's any cancer concern due to the risk of metastases. I think it's to cover all possibilities save you going back for more at a later date. That's what we do in the Veterinary world. Not that it's similar but maybe the thought process is, I'm not sure.

I guess there is a possibility that it all could have effected your iron levels, it's alot for your body to go through, so the dizziness could be a result of that. 

I've got another 4 weeks to wait for my initial scan, so quite a while yet when I feel the way I do. I think it's all in my head  but I definitely feel worse since having my blood results.

I'm ovulating this week, and I'm cramping like a bad period which is unusual, but I think it's all just me making myself feel worse.

Hi

How are you feeling?  Hope your coping OK.

They had the MDT today and I had a phonecall earlier from hospital, I've been booked in to the consultant on 1st June to discuss all results, MDT outcome and plan.

Just more waiting, 9 days then hopefully I will know everything x