Struggling

I am 8 days post treatment, I had 30 days radiotherapy and 2 sessions of Chemotherapy.  I am struggling with recovery.  Excess saliva is the main thing, I am sat all day and night with a bowl constantly spitting into it. It really getting me down is there anything I can do . I was told this was normal after treatment but doesn't feel like. I am feeling so down 

 

Lynnf

  • Aww thank you, consider it done. Nothing puts baby in a corner. 

     

     

  • Hi Sean

    How long before can eat again, I am able to swollow but not eat as mt tongue very sore. I am so hungry and can smell all food my husband eats

     

    Lynf

  • Hey Lynf

    It was a couple of weeks at a time for me where I wasn't able to swallow or barely hold anything in my mouth for long at all..

    ask the husband to grab you plenty of ice lollies/ice cream (whichever is your favourite) and if there's a place near you that does Slush Puppies - grab those! If the ice lollies are difficult see if he can crush them into a glass for you 

    don't put too much pressure on yourself with the eating - if you can only manage very small amounts then just do that to get you through. But yeah - ice lollies and slush puppies got me to the other side!

     

    sean x

  • Hi Sean

    Thanks for that I will try today  my swallowing is getting better each day just need ulcers on tongue to settle down.

    Is there anything I can put on them to help. I not been out the house in 8 weeks only to go hospital appointments so today am going down to beach for some fresh air .

    Thank you for your support 

    Lyñnf

  • Don't put anything medicated on it - once a day swish some saltwater around and spit just to keep them as clean as possible

     

    and yeah.. just stick to the ice lollies. Have fun at the beach 

  • Hi Sean

     

    I tried the slush puppies still a little painful. Managed 5 spoonfuls of cold rice pudding today .  

    Its that funny taste you get when to try to eat something. Night Times are worse as unable to sleep. Wish I could sleep just one night  

     

    Lynf

     

  • Well done you! You've battled fought and are winning ! These are rough days but they will get better.. 

    stay strong x 

  • Offline in reply to rks

    Hi 

    I hope so I was doing so well and then today had a bit of a set back.  Mouth full of think mucus again . Not had this for days and don't know what to take to help it x

    Lynf

  • Trying to stay strong but another bad  day and I feel so bad for crying. It started when we drove past a McDonald's and I said can't wait to have on of them.

     

    Next thing i broke down and cried all afternoon saying why me, why did i have to get this, its not fair.

    I feel so bad saying these things when my husband has been fantastic looking after me even gave up his job

    Do these emotions ever come to an end. 

    Lynf x

  • Don't beat yourself up. you've been through enough.

    My wife is around a year out from treatment and still has rough-ish days. As for feeling upset, I still struggle mentally from what we went through, and i wasn't even the person with the diagnosis.

    Seriously, you've been through a helluva lot and I think you don't actually quite grasp the enormity of what you've just been through, and achieved. It's only recently it hit us what we went through. There were some very dark times during her treatment. times i thought she wasn't going to pull through. But she did. You crying is probably your way of shedding the stress from your first symptoms, to your diagnosis, then treatment, and now aftermath. Things do get easier, but if there's one thing we learned from all of this, a cancer diagnosis does not end on the last day of treatment. Those mental scars will take time.