Worried about bowel symptoms

I find myself here again, 6 months ago I had a breast cancer scare but all thankfully turned out ok. Now I am having tests to rule out bowel cancer. I'm trying very hard not to end up down the Googling rabbit hole but struggling. I'm terrified of having to have another endoscopy as I had one years ago that didn't go well. Equally I dread colonoscopy. If my faecal tests come back ok will that be the end of the tests? I'm 47 and never had issues with my stomach before 

Thanks for reading 

Parents
  • I should have put symptoms in! Change of bowel habit from pretty much constipated all my life to a mix of that but now lots of loose stools. Wind wind wind, I'm full of gas, you can hear my stomach all night which is keeping me awake it's horrible. The wind is definitely the worse, I can feel it trapped trying to come up after I've eaten - indigestion and then it moves to the other end later on. Starting the tests today and terrified 

  • Hi everyone, I am really worried about my symptoms. I have lower left pain in my abdomen, for a few weeks now, comes and goes, feel pretty terrible at night , gassy and uncomfortable. I had FIT done witch was negative, abdomen and trans scan, both ok, blood tests ok, but calprotectin level at 87. Also confirmed helicobactor diagnosis. My worry is since having all there tests done and higher calprotectin my bowels have got worst, I am checking my symptoms all the time and every day I seem to get a new one. I can hardly sleep at night and get gassy as soon as I swallow my food. Would aprcieatw if anyone could give me some advice or had similar symptoms . 

  • Hi Anaw me again 

    is the calprotectin level the marker for IBS? X

  • I believe it's for inflammation, anything above 50-100 is borderline, mine was 87. There isn't so much information on the lower end of raised, just for the very high one. Some websites  say it can be for IBS, some for IBD. Not sure what to believe anymore. I had a very low back pain during the night and digestive issues, which really freaks me out. I am starting that think that colonoscopy might be the only way to go. X

  • Sorry to hear this. I think I will end up in colonoscopy too. I'm so worried, three loose very dark stools today. Not fun at all this, is it 

    I hope you get some sleep x

  • Hi Anaw

    How are you doing? My FIT test came back negative and whilst I'm obviously very pleased about this my husband just said yeah just means no blood not no cancer? Guess I have to wait for all the other tests. I had my bloods yesterday and they are usually pretty quick. How are you? Are the meds making any difference 

  • Hi bubbles

    iwent to the doctor yesterday, he said he is not concerned because my tests were ok, apart from the     Inflammation which was a bit raised. He listened  to my bowels and said sounds ok but I am still getting very bloated and get stabbing pain in my abdomen after eating, he said if the calprotectin tests comes back raised he will do a referral, and also talked  about peri menopause.... I feel a bit fobbed off since I still have symptoms... glad your test came back negative x 

  • Hi Anaw I'm glad you're ok but it's frustrating when you can't get answers. Funnily enough my breast cancer scare was changes due to peri menopause and whilst I refuse to accept I'm at the age where this is a "thing" I did wonder if it could be related. If it is it's going to be a long few years! I don't like it when everything is brushed off as menopause but I did read an article recently about a lady whose mum kept having all these things go wrong medically but no one knew about peri menopause then and she spent so much time having scans and medical tests. You know your own body though so keep searching and it's good the tests were ok xx

  • I know, let's see how it goes, keep in touch xx 

  • How are you getting on Anaw? I have a follow up with the doctors today but expecting to get referred to a gastroenterologist. I've also been reading up a lot on SIBO, have you ever looked into that?

Reply Children
  • Hi Bubbles

    i have not been great, lots more symptoms, one day constipation, next ok. I have pretty bad anxiety, so mot sure if this helping... I went back to the doctor, he said don't worry, listened to my bowels, etc.. he said he will refer me to gastro, just waiting for one more repeat calprotectin test to come today and he will call me today. I also have a pain in lower left abdomen on and off, lower back and hip... honestly, just about had enough now.. I did look at Sibo, if it was that I would probably be happy. How are you coping? Xx 

  • Sorry to hear this. I am the same, I now have constant loose stools. Not a nice colour and not at all right. Ridiculous amounts of gas and bloating. The anxiety doesn't help does it it's hard not to go down the rabbit hole of panic. Have you had scans / colonoscopy etc I can't remember and can't scroll back. I'm going to ask to be referred too. It's a waste of energy sitting here worrying when I could be talking to someone specialist. Mine is also sending weird pains into my bladder now.  All very worrying. Hope you have a better day 

  • Same here Bubbles, bloating pain at night etc...hope you have a better day too, keep in touch xx I had ultrasound of abdomen and transviginal one, all came back ok. Hope you have a better day too, keep in touch xx 

  • Hi Bubbles, did you ever get a diagnosis? I am having very similar symptoms, but with indigestion even after water and am terrified as I’ve had symptoms last 8 months that I’ve explained away rather than go to GP. Any help would be appreciated xxx