Worried about bowel symptoms

I find myself here again, 6 months ago I had a breast cancer scare but all thankfully turned out ok. Now I am having tests to rule out bowel cancer. I'm trying very hard not to end up down the Googling rabbit hole but struggling. I'm terrified of having to have another endoscopy as I had one years ago that didn't go well. Equally I dread colonoscopy. If my faecal tests come back ok will that be the end of the tests? I'm 47 and never had issues with my stomach before 

Thanks for reading 

Parents
  • I should have put symptoms in! Change of bowel habit from pretty much constipated all my life to a mix of that but now lots of loose stools. Wind wind wind, I'm full of gas, you can hear my stomach all night which is keeping me awake it's horrible. The wind is definitely the worse, I can feel it trapped trying to come up after I've eaten - indigestion and then it moves to the other end later on. Starting the tests today and terrified 

  • Hi everyone, I am really worried about my symptoms. I have lower left pain in my abdomen, for a few weeks now, comes and goes, feel pretty terrible at night , gassy and uncomfortable. I had FIT done witch was negative, abdomen and trans scan, both ok, blood tests ok, but calprotectin level at 87. Also confirmed helicobactor diagnosis. My worry is since having all there tests done and higher calprotectin my bowels have got worst, I am checking my symptoms all the time and every day I seem to get a new one. I can hardly sleep at night and get gassy as soon as I swallow my food. Would aprcieatw if anyone could give me some advice or had similar symptoms . 

Reply
  • Hi everyone, I am really worried about my symptoms. I have lower left pain in my abdomen, for a few weeks now, comes and goes, feel pretty terrible at night , gassy and uncomfortable. I had FIT done witch was negative, abdomen and trans scan, both ok, blood tests ok, but calprotectin level at 87. Also confirmed helicobactor diagnosis. My worry is since having all there tests done and higher calprotectin my bowels have got worst, I am checking my symptoms all the time and every day I seem to get a new one. I can hardly sleep at night and get gassy as soon as I swallow my food. Would aprcieatw if anyone could give me some advice or had similar symptoms . 

Children
  • Hi Ana

    Have you had treatment for the helicobactor? You sound the same as me but further on with tests :(

  • I only started it recently, since you have to take 2 lots of antibiotics I was worried I was going to be sick while at work. I feel worse now then before I started the tests process, anxiety through the roof new symptoms etc.. not had a good night for ages, just gassy and in pain in lower left abdomen on and  off . Feels like being stuck in limbo at the moment, hope you are coping better Bubbles x 

  • I really hope the meds start working Ana, it's so stressful and I like you am not getting any sleep. I wonder if anxiety is making it worse for us both 

  • I have always been extremely anxious person, so I do hope thats the case in some way. X 

  • I've just found blood in my stool now I'm very panicking 

    it's gross but I was doing my stool samples and so without getting graphic had to handle it a bit and a small red blob

  • I had very similar, I thought I had blood when I took the sample but it came back negative. , it could be from a tear or something similar 

  • Thank you. I'm in bits. It was definitely red and one small black part too. This is getting a bit scary I wouldn't have even looked at it so closely normally so I wonder how long it's been happening 

  • That's how I felt for the past month. We are our worst enemies when it comes to this stuff, i am too constantly checking the toilet and looking for symptoms. My work colleague  is medically trained and she says there is a wide range of disorders that cause similar symptoms  . So let's hope this the case for us x 

  • It's an awful feeling isn't it Keep in touch, I hope things work out well for you 

  • Hi my lovelies,

    Can I jump in on this post also please?  I have the exact same symptoms but also major bloating (I look 8 months pregnant no exaggeration and keep getting asked when I'm due) which is rock solid and I am passing black tarry stools.  I am a bit further ahead in tests than some of you though.  This started a few months back (though I was diagnosed with IBS around 15 years ago, I'm 40 now and always had issues with constipation) when my stools turned to black tarry diarrhoea instead of the usual constipation and I had major stomach pains.  I called gp and was told I had to wait 3 weeks for an appointment.  I then had a little blood when I vomited.  At that point the gp said they could see me in a week.  When I went she was really lovely and contacted the hospital right away as she thought I may have a tear in the esophagous but also got me to do a qfit stool test.  A week later I went for an endoscopy (gastroscopy) where they have found a large prepolyic ulcer, severe gastric erosion and "marked amounts of bile" in my stomach.  I actually wasn't aware until then that bile shouldn't be in your stomach lol.  So it seems the gas burbling up at night and making me feel sick etc is from the bile.  They have taken a biopsy and said there could be a few reasons for it.  There is helicobactor pylori but supposedly she couldn't test for that as I was already on PPI at the time for the last 2 years (yep this "it's just ibs" answer as usual) but could also be a gastrinoma so they are testing for that.  At that appointment she told me my qfit test was positive so I will also need a colonoscopy to check my lower bowel.  That was 5 weeks ago yesterday and I've heard nothing.  No test results at all and no appointment.  I have called and been assured I am on the list but been told it will be within 12 weeks of the referral which was 5 weeks ago.  I've been put on stronger PPI esomeprazole 40mg twice a day which has helped a little with the reflux but not much and I'm still in pain.  I still have daily diarrhoea and it's still black and tarry so still bleeding.  I'm just about to finish a course of antibiotics I was given for a kidney infection last week so I feel a bit all over the place.  The waiting is driving me insane but I'm just trying to stay positive and feel like the fact it's taking so long would probably be a good sign as if it was cancer I'm sure they would be much quicker at seeing me back etc.  sending love to you all.  Here if anyone needs a chat xx