Hi Emmalou,

I totally feel your frustration and worry on this.  I had a gastroscopy (which was horrendous!) and they found gastric erosion and ulcers so they took biopsies to check for gastrinomas and something called Zollinger-Ellison.  They said it would take "a few weeks" for results and put me on strong PPI meds at that point with an appointment to be sent out for another gastroscopy in 8 weeks time to check if the meds were helping at all.  At this same appointment I was told my qfit colorectal cancer test had come back positive so I would need an urgent colonoscopy.  It's now been 5 weeks (today) and I've heard nothing.  I called gp and they said still no results at week 3.  Last week they then called me wanting to a blood test to check my ferritin and hemoglobin but again, said there were no results yet.  I called the endoscopy coordinator who has said they downgraded my colonoscopy appointment from urgent to category 1 so it means I should have it within 12 weeks of the referral (so possibly 7 more weeks to go) but when I asked why it was downgraded and if my results were back she said it was downgraded as they have a backlog and a positive qfit is usually "just a category 1".  I'm at my wits end.  I'm still unwell with the symptoms and bed bound (though the meds are helping the bile a little) and I'm a mum of 3.  I'm very lucky that I live with my parents after having a TIA several years ago so they are helping.  I feel like I can't talk to anyone about how I feel though as I don't want to burden them and also don't want to seem dramatic as it could be nothing serious.  The waiting is so hard as our mind races and goes to every possible outcome.  I'm hoping the fact the results are taking so long means it isn't cancerous?  I don't know though so I can understand your concerns.  To say they won't see you for 3 months if it's all clear then just send an appointment for a few weeks time with no information as to why is awful.  Your mind must be racing.  I wish I could do something to help but I just wanted you to know I'm hear and if you need a chat I totally understand.  I hope all goes well at your appointment and it's just been so quick as they've had a cancellation or something. 
 

Sarah xx

Hi Sarah, how are you doing now? I wondered how long it took for you to eventually get your results? I’m in a similar position with gastric erosion found and red patches which my Consultant said was inflammation. I was put back on Omeprazole immediately. Biopsies were taken nearly 2 months ago and I still don’t have the results. I had an appointment with my Consultant 3 weeks after the gastroscopy and the results weren’t back yet so she didn’t have any results to give me. I called my GP yesterday and the admin team said the results and report are still with my Consultant and the Consultant hasn’t discussed it with my GP yet. I’m worried if this is bad news. The next appointment with my Consultant was booked for mid October by the hospital admin team before the results were released so I’m thinking if it was bad news, my Consultant would bring the appointment forward. I honestly have no idea but the wait is driving my crazy! 

Hi Sarah, how are you doing now? I wondered how long it took for you to eventually get your results? I’m in a similar position with gastric erosion found and red patches which my Consultant said was inflammation. I was put back on Omeprazole immediately. Biopsies were taken nearly 2 months ago and I still don’t have the results. I had an appointment with my Consultant 3 weeks after the gastroscopy and the results weren’t back yet so she didn’t have any results to give me. I called my GP yesterday and the admin team said the results and report are still with my Consultant and the Consultant hasn’t discussed it with my GP yet. I’m worried if this is bad news. The next appointment with my Consultant was booked for mid October by the hospital admin team before the results were released so I’m thinking if it was bad news, my Consultant would bring the appointment forward. I honestly have no idea but the wait is driving my crazy!