CA125 tomorrow

I have an appointment for a CA125 test tomorrow.

My history/story so far.

I'm (self diagnosed) peri menopausal. I have had issues with periods (extremely heavy bleeding)  for years but for various reasons I've not got around to going to the drs about it. For the last few years I just thought it'd all be over soon as I'm now 50 so just put up with it. Downside of this has meant I've missed 2 smears.

November 2022 I ended up in A&E with what I assumed was anaemia on account of the heavy blood loss. I wasn't wrong, I was severely anaemic. My reserves were depleted. I ended up on an iron infusion and I'm still on iron (though it's getting back to normal) and B12 which was also deficient. They kept me in overnight as they weren't happy with my breathing and heart rate. Further tests (D-dimer, xray, scan) confirmed I had unprovoked bitlateral PEs (blood clots on both lungs) so I'm currently on Apixiban (next lung appointment in May).

This sparked referals to check my heart (all fine) and gynaecology. They did a smear (all fine) two biopsies - one on some growth at the neck of the cervix(all fine) and a womb one(again fine). A scan was arranged and I had that on the 23rd March. She mentioned cysts but was so dismissive I felt like a fraud at that appointment so assumed everything was fine. Friday I received a letter from the gynaecologist consultant to make an apointment at my drs for a CA125 blood test. I made the appointment straight away (which will be tomorrow), I then made the mistake of googling what a CA125 blood test is...

So far I've gone through this whole process just thinking everything is fine and everyone else is over reacting but what if they're not?? 

I mentioned the previous drama that got me to this point because I have read of links between unprovoked Clots having a link to cancer(including undiagnosed). No idea how true or what the percentage of that is, I tend to stop reading (taking any notice) if it's not what I want to hear.

Not sure why I'm posting other than wanting reasurance really. I think I've read so much negativity that I want to balance it with a positive perspective ;)

Thank you for reading if you got this far.

  • Just wanted to say hello OptimalStar and I hope your test went ok yesterday. 

    When you’re worried that you may have cancer, it can be natural to think the worst, but this can end up increasing anxiety rather than making you feel better. The only person that can diagnose you is your doctor. 

    Best wishes,

    Moderator Anastasia