Suspected thyroid cancer - coping tips

Hi everyone,

Newbie here. I have had a swollen lymph node in my neck for a few months now (I didn't realise it was a lymph node at first so I didn't check for anymore, I assumed it was a spot or something!).

I went to the doctors a few weeks ago as suddenly I began to feel an intense pain in my neck, lots of hard lumps near my throat and developed a hoarse voice. It's a very odd pain, almost a tight swollen feeling that starts in my neck and radiates up my jaw and into my ears. The GP had a feel and identified several lymph nodes in my throat and one on my elbow, but she also found a hard lump on my thyroid. She sent me for bloods first to rule out hypothyroidism, which came back clear. She seemed more concerned after this and has referred me to head and neck at the hopsital under the 2ww pathway for suspected thyroid cancer, although she said this may be rejected due to my age (I'm only 24). 

I'm of course hoping that it won't be cancer, although what is more difficult for me right now is the pain I feel in my neck. It's very strange, my voice is hoarse but my throat itself doesn't feel sore - it feels like the outer swelling is pushing on my windpipe but it is so painful, especially when it radiates up to my jaw. I always feel the swelling but the pain seems to come in waves. Other than that it's like having a huge lump in my throat, and it's painful to swallow too. 

Has anyone had any experience of this pain before (cancer or not!) and if so, have any recommendations on how to cope in the meantime? I'm struggling to focus at work and it's driving me to tears at the worst points. I have tried a heat pad but it doesn't seem to work :(

Thank you in advance :)

  • Hello Loobiloo98

    I'm sorry to hear that you've had some ongoing health concerns recently. It's understandable that you're feeling anxious and worried about what may be causing your pain and the other symptoms you're experiencing. 

    I know that we do have some members here on the forum who have been through thyroid cancer and hopefully they will reply to share their experiences with you and offer some support. 

    In the meantime, I wonder if you might find it helpful to chat with one of our nurses. I know they will be happy to offer any advice, information, and support they can whilst you're waiting for your diagnosis. If you'd like to talk with them they're available Monday to Friday 9 am to 5 pm on 0808 800 4040. 

    I do hope that the team is able to give you some reassurance at your appointment and that they're able to help resolve this pain quickly. 

    Best wishes, 
    Jenn
    Cancer Chat moderator 

  • Hi, I'm sorry to read you're in so much pain. Waiting for a diagnosis can be super stressful.  I was diagnosed with thyroid cancer two years ago. I never had any pain, just a very fast growing lump. I had surgery to remove my thyroid and two doses of radioactive iodine. If you find out it's cancer, thyroid cancer is usually contained and unlikely to spread, so may not be as bad as you might imagine it could be. Try to stay positive and I hope you get the pain sorted soon 
     

  • Thank you Jen and Lan, it is nice to feel a bit less alone in this.

    Sorry to hear about your cancer Lan and I hope all is okay now. From what I've read the pain I'm having seems unusual, so I am really hoping it's a sign that it's not cancer. However I'm also really heartened to read that it seems like thyroid cancer is one of the 'best' ones you can have as cancer goes, so I am trying to stay positive either way.
     

    If anyone else reads this and is having similar pain, I have found ice lollies to be the most effective method so far!