So scared i have ovarian cancer

m almost 49-havent had a period for 10 months.
Symptoms of constant bloating, back pain, chest pain,loss of appetite and feeling full quickly.
Went to GP who done a ca125 test-came back last week @ 134
Waiting to go for an ultrasound and chest xray on Tuesday.
I am sooo scared. My mum died 7 weeks after being diagnosed with ovarian cancer & widespread mets in 2013.
Am i being paranoid???
Im going insane waiting and feel im imagining the symptoms are getting worse!!

  • I am waiting for am MRI or CT scan. I have different symptoms to you - heavier periods and bleeding during ovulation. I went to the doctor and she recommended and ultrasound to check for fibroids. They found what appears to be a dermoid cyst so then did a blood test. My CA125 came back at 265 so I was put on the 2 week wait and had my appointment last week. The consultant said he wanted to redo my blood test and then would decide on a CT scan or MRI. I'm so scared about what my level is now, I'm just watching my phone waiting for a call (he said they would phone). 
    I don't know what I could say to reassure you, but wanted to reach out and say you're not on your own. Hope you find some answers soon and wishing you all the best

  • Hi Susie and Kemmy, just wanted to say hello and wish you all the best for your results. It's so stressful waiting for further investigations. Susie, I had so many other aches and pains appear while waiting for results, all stress-related as it turned out xx

  • Thank you Kemmy!!
    It is a horrible time and it just makes our heads go mad!!
    I really hope all goes well with you!!!!

    Keep us updated

  • Thank you very much!!!!
    How long did you have to wait for results?

    How did things end up with you?

  • Hi Susie, I had a biopsy of suspicious tissue in my breast. I was told a two week wait for results and got them after 12 days. In my case, it was cancer but it is thankfully treatable and I had surgery this week. My mum had breast cancer 20-odd years ago and diagnosis and treatment have come a long way since then xx

  • Hello m

    i had breast cancer last yearcim currently on holidayvmetva last she had ovarian cancer 7 years ago and is perfectly fine xx 

    goox luck love Lara ️

  • Hi Susie

    Have you had any updates yet? I've got a scan next week and a gynae appointment the week after so hopefully will know something soon. I tried to find out about my second CA125 test level but the hospital wouldn't give it me over the phone (they would tell the consultant I asked) and my doctors surgery haven't been given the result either. I don't know whether this means anything. 
     

    Hope you are doing well

  • Hi l have had complex overian cysts l had left sided pain, bowel changes, weight loss, After the scans ect l had surgery it took 4 1/2 hours due to left sided extensive adhesions . The waiting for biopsies was a bit of a rollercoaster and took 5 weeks. The results were fortunately benign . 
    lm post menopausal so my overies should be dormant. 
    l hope your results are negative and something like mine that can be treated easily. 
    Do try to keep busy, l hope you hear soon. 
    susie

  • I have had similar experience with heavier period but I wondered how long it took you to get your CA 125 test back, I have on my NHS online test portal Patient Know Best that it will take 26 days to get my results. I thought it was 48 hours to get results back.

  • With the first one I had that was ordered by the GP, it was on the app and the GP rang me in under 24 hours! The second one ordered by the consultant was done 10 days ago and it hasn't appeared on the app and I haven't had a letter or a phone call yet. I don't know why it's not showing up. When I called about it the secretary said they have the result but can't give it me over the phone.

    Hope everything comes back fine for you