Spirit 

have you had any biopsy or mammograms? 
 

Biopsy so far but not had results yet that's 20th march ,si nothings been confirmed yet , CT scan was last week but they saydthey will have to reschedule it cause the consultant needs to contact me to write to my GP to prescribe a medicine for me to take before the contrast dye because in allergic to iodene, then make another appointment for the CT scan 

That's a long time until the 20 th for biopsy results , why are they booking ct scan if you haven't had results though that's confusing for you no wonder you are stressed I'm so sorry you are feeling like this 

love Lara ️

The biopsy results I believe the telephone was for that was for 9 days after the clinic appointment , I missed her calls due to Nightshift with my son which she noted to ring me in an afternoon or jecringher toget a date for my results, I tried ringing a few times in the early days like she asked me to but was just ringing out. So she rang me a few times but really early morning 8 days after biopsy , she only left one message and that came in just as the nurse was coming in the house, so I couldnt reply to her but the message said she had made a telephone appomutment fir the next morning, but she rang me half hour before leaving work so I couidnt get hold of her. Ilatergot a text saying appointment Bern made for the morning , well I'd had my son screaming night before and nebabd my sister trying to console him..I thought I can't go to bed now cause of the appointment so that would have been two nights I hadn't slept and getting bad news would mean I still wouldn't sleep and I can't just ignore my disabled son who depends on me and requires 24/7 care..ibeed tobe prepared , cause there was no contact details on the text and she had gone home I had to miss the appointment , I was exhausted and needed to sleep not to mention the pain withy breast , anyway they automatically gave me another telephone appointment for a week away but again morning !  It thus time I got a patient portal letter so I was able to email..I explained my situation and the booking team rearranged to suit, so I confirmed it then noticed they put hospital appointment so I queried it and then said they can confirm it's a telephone appointment 20th march..I thought it's odd don't seem to be rushing for treatment then othwise surely they would say need to speak to you sooner? 

My letter saud she had looked aty condition and decided it was safe to have a telephone appointment . But that means nothing because at clinic she said they do give bad news over the phone too when I asked. 

At the clinic before I had the biopsy just by looking at me they saud they would arrange fur a CT scan and some antibiotic gel for my wound. 

When I got upset the nurse said I don't know maybe we will try a bit if chemo.

5 days later was my date for CT scan this was before biopsy results were ready , so I rang them about my iodene allergy and they said you can go down and have the basic scan..so got into a gown and they asked me about the iodene then went to ring my consultant I dudnt even know I had , and he said no they can't proceed he wants the contrast dye as doesn't want to miss anything.. so she said he will be in touch shortly to speak to you about medication to take and then you will get a new appointment for CT scan .

There's where I'm at..biopsy results in presuming it is, and waiting for medication and CT scan referral 

Bless you that's so much to take in so they offered chemo even before the biopsy results that is crazy 

I'm sure they can't leave you until the 20 th they would have called by now if there was anything sinister found surely they don't normally leave it a month or so I would call back the breast nurse to ask if she's got the results 

love Lara ️

Hi Lara, it's not them dragging their heels it's me, I can't cope with biopsy results then wait again for CT scan results I won't be able to function ...you know that saying ' ignorance is bliss' I suffer from severe anxiety, my sister's trying to take over my son's care , I'm not supposed to lift him now etc but I have to do certain things as everything's up in the air, my sustersgot her own health issues and she needs to be best she can be to take over when I herd her too, our parents are late 70's , my partner severe health anxiety ...I need some peace and rest cause I've had pain to deal with too..I will fall to pieces,,, I've got family to lookout for too bin of us will beable to cope so I'm glad I got the breathing space for the results but I was surprised it was that long away..? 

My nurses notes says advanced breast cancer with the wound thing ... That was two days after biopsy they came out , so obviously could tell by examining me .

So one ir two things going off here in my mind,, I can't be treated so they aren't rushing with anything cause I feel fine in myself or the delay doesn't matter , either way I'm terrified , they didn't mention the word cancer at clinic but they implied it cause I have a big hard cluster lymph nodes same side as breast ...whatever this is it's been haoiening over three years but over the last 9 months my phone breast became hard and I had the infection puss and that and my lymp nodes came up wasn't there before so I thought infection..the antibiotics they have before clinic I was in the middle of the course and it got rid of the pain but now I'm off them I've got pain again but can now feel hajf my breast tissue which I cluidnt before but no infection but wound is still healing at the mo.

Oh and just to add what you said about sister they epuid contact me..she had tried a few times 9 days after biopsy but dudnt leave messages ,only one message but dudnt say Claire it's urgent or we really need to speak to you..but that duesnt mean anything cause they prib can't treat until I've had the CT scan bit they dint seem to be rushing with that either at the moment. Me knowingy biopsy results isn't going to change anything only they can make those descsions based on other tests 

Spirit 

you have a lot going on especially looking after your son and the pain you are in already and the nurses calling I can imagine it's hard for you at the moment I do feel for you , are you able to go out for a coffee or fresh air for a Little hour just to take your mind off the worry for a little while . 

love Lara ️

No we shielding as we are all vulnerable , even if we wasn't I have anxiety , I've got my son's appointments to Conte d with too

Spirit 

Oh right you are still shielding I wasn't aware of that sorry 

yes of course best to be safe , anxiety is terrible thing and you got this sorry on top I really hope you get answers before the 20 th just to settle your mind 

love Lara ️