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Endometrial Biopsy - results/waiting time

Diamondxox
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Hi! 
Im 25 years old.. 

Overview: Since I was 18 I always had irregular periods ect.. Ive been fobbed off for years! Evenutally was diagnosed with PCOS, was told I pretty much couldnt have children. Me and my partner were having unprotected sex 4 years and nothing! Any how in lockdown a mircle happened!! I got pregnant! Long story short I have a very healthy 21 month old son! This is when my problems got bad.. 

He was an emergancy c section & I was put to sleep. 3 week after I started bleeding (I think my period I dont know anymore) any how this bleeding continued for 10 months straight non stop! Doctors fobbed me off didnt really know what to do, so I begged for a refural he put me in for one but non emergancy. After 10 months the bleeding stopped for a couple weeks.. and now I bleed for 23-26 day then i stop for a week or two then its the same again.. the pain I get a week before I start bleeding that continues through is nothing I could ever explain, I feel just dead almost, im taking lots of opiods to manage the pain but its truly ruining my life & my experience of motherhood with my little one.  anyhow I finally got my refural on the 14th of Feb! In which doc did a endometrial biopsy? Im abit shocked that I was offered no pain releif to help this process as I was in aggony, my legs were shaking so bad and I literally couldnt stop them! Any how the doc said hes sent it as an emergancy and I should have results back in 2-3 weeks! We are almost hitting 2 weeks and absolutely nothing? Ive been told to wait for a letter..

I just need to know has anyone else experience this? Ive been having the worst depression and anxiety the past 2 weeks, im struggling to cope really I just want to sit and cry.. 

Should I assume its good news? That Ive waited this long? I just need some reassurance? Has anyone waited 2 weeks with no results and then still got bad news? Or should I expect them to be normal with it being a while? Im so worried I just need peice of mind - why does NHS now only give results by letter? I cannot concentrate on anything I feel alone & scared (only because of how much pain im in daily and the extent of the bleeding) I just need some reassurance from someone, anyone please

 

sorry for the ramble xx

Parents
  • Offline

    Hi, 

    I know exactly how you feel, daughter had a hysteroscopic partial resection of a fibroid two weeks ago. Reason being concerns over it's rapid growth. MRI showed no distinct suspicious features so I'm wondering why they want a biopsy? She is anxious beyond belief and crying all the time. I thought this type of sarcoma was rare in younger women? Still no results two weeks on! 
    so very scared 

    x

  • Offline in reply to jujo6464

    Oh my gosh! Sending so much love to your daughter! I have not been offerend any scans MRI's ect they just went straight for the biopsy so now Im so scared as I truly believe I possibly just had endometrios! How old is your daughter if you dont mind me asking? Im 25 so Im hoping on the fact im abit younger and its alot rarer in younger woman! Ive cried so many times and I feel pretty alone, just hoping I get sometime back on wednesday! Fingers crossed good news! Sending much love xx

  • Online in reply to Diamondxox

    Hi

    I'm still waiting on biopsy results.. 3 weeks today.

    I have bad health anxiety,  its awful waiting. 

    Best wishes to you x

  • Offline in reply to Fallmare

    Aw no!! Have you called to see if theres any updates? Waiting is the absolute worst! Its just the unkown sending much love x 

  • Online in reply to Diamondxox

    I'm to scared to, if that makes sense. 

    Thankyou for the love, its much appreciated xx

    Best wishes to you 

  • Offline in reply to Fallmare

    No I totally get you!! Im literally terrified of what the results could be! Please keep me updated & stay safe! Sending so much love ️

  • Online in reply to Diamondxox

    ️

    I will do x

    Hate hate hate health anxiety 

  • Offline in reply to Diamondxox

    Morning, 

    we phoned the secretary again this morning. Jodie's results are back but the gyno hasn't even looked at them yet. I keep thinking this could be a good sign as are the flagged up if positive? We have asked for a phone call but they've said they can request one but he is very busy and it's not something they usually do. So I suppose we now have to wait for an appointment letter? So distressing. Just want someone to say that they are all ok. 
    ang more news on yours? xx

  • Offline in reply to jujo6464

    Oh im glad to hear they are back!! But not so glad to hear that they have not been addressed especially when the unknown is severly stressful!! Hope you hear back asoon as possible!! How long have you waited ? I rang this morning and she said they are still not back funny enough I actually questioned weather the were actually back and just not reviewed or just not back and she assured me they are just not back yet but are stamped as urgent, she promised me the second she got off the phone to me she would speak to pathology and chase up! However she also said this wednesday and obviously still nothing! Im just so stressed! I actually managed to get on my gps records this morning, and it says my last ultrasound my ET was measured at 14mm.. Im not sure if thats normal or not.. no one has explained that to me? But im guessing its normal as this scan was last year and there was no further action? It was also mention that the scan showed RPOC? But in the doctors notes it was 'inital scan showed ?RPOC but 14mm ET' i have absolutely no clue what that means but again this was last year and there was no futher action! What even is RPOC? I have PCOS? Im just feeling overwhelmed and like nothing at all is being explained to me properly 

    sending love! Keep me updated xxx

  • Offline in reply to Diamondxox

    Hi, 

    oh it's sooo frustrating. They don't seem to explain much at all. I've never heard of RPOC either. We haven't been told if Jodie's are urgent or not, I wish we had as it would help. On Monday the secretary said she'd request a phone call from the gyno as I explained Jodie is not wanting to go to the hospital but today ( I think it was a diff secretary) said it's not something they do. Do we have another weekend if high anxiety and worry. We could just sit and cry that's how we are feeling. I really hope your results come through soon xx

  • Offline in reply to Diamondxox

    It's been 18 days since the biopsy, but all in all a month since they decided she needs a biopsy xx

  • Online in reply to Diamondxox

    Hello again 

     

    No results again today. 22 days since the biopsy. 

    I'm just to scared to ring up. My health anxiety won't let me do that

    Best wishes xx 

    Hoping your alright xx

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