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Endometrial Biopsy - results/waiting time

Diamondxox
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Hi! 
Im 25 years old.. 

Overview: Since I was 18 I always had irregular periods ect.. Ive been fobbed off for years! Evenutally was diagnosed with PCOS, was told I pretty much couldnt have children. Me and my partner were having unprotected sex 4 years and nothing! Any how in lockdown a mircle happened!! I got pregnant! Long story short I have a very healthy 21 month old son! This is when my problems got bad.. 

He was an emergancy c section & I was put to sleep. 3 week after I started bleeding (I think my period I dont know anymore) any how this bleeding continued for 10 months straight non stop! Doctors fobbed me off didnt really know what to do, so I begged for a refural he put me in for one but non emergancy. After 10 months the bleeding stopped for a couple weeks.. and now I bleed for 23-26 day then i stop for a week or two then its the same again.. the pain I get a week before I start bleeding that continues through is nothing I could ever explain, I feel just dead almost, im taking lots of opiods to manage the pain but its truly ruining my life & my experience of motherhood with my little one.  anyhow I finally got my refural on the 14th of Feb! In which doc did a endometrial biopsy? Im abit shocked that I was offered no pain releif to help this process as I was in aggony, my legs were shaking so bad and I literally couldnt stop them! Any how the doc said hes sent it as an emergancy and I should have results back in 2-3 weeks! We are almost hitting 2 weeks and absolutely nothing? Ive been told to wait for a letter..

I just need to know has anyone else experience this? Ive been having the worst depression and anxiety the past 2 weeks, im struggling to cope really I just want to sit and cry.. 

Should I assume its good news? That Ive waited this long? I just need some reassurance? Has anyone waited 2 weeks with no results and then still got bad news? Or should I expect them to be normal with it being a while? Im so worried I just need peice of mind - why does NHS now only give results by letter? I cannot concentrate on anything I feel alone & scared (only because of how much pain im in daily and the extent of the bleeding) I just need some reassurance from someone, anyone please

 

sorry for the ramble xx

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    I would say don't worry as I had Cancer Endromitrium and they called me the next day and I was admitted into hospital immediately I certainly did not wait 1 - 2 weeks. 

  • Offline in reply to cherico

    Oh my goodness Im so sorry to hear that! Hope your doing okay now?x

    thankyou so much for your reply, you literally do not know how much relief I feel after reading this!!
    So did you get your biopsy back that fast?? Im now guessing the longer I wait the better possibly? Honestly thankyou so much & sending much love ️

  • Offline

    I had hysteroscopy and biopsy back in July and heard by letter after just over 4 weeks. I think I would have had a phone call before that if needed. The letters were dated at least 10 days before I received so the results and the MDT meeting were obviously earlier. My outcome was repeat scans and further biopsies after six months, nothing suspicious found but cysts and polyps (now removed). Biopsy last week I was told results are taking 2-3 weeks to come back to them from histology now.

  • Offline in reply to cherico

    Hi, 

    I know exactly how you feel, daughter had a hysteroscopic partial resection of a fibroid two weeks ago. Reason being concerns over it's rapid growth. MRI showed no distinct suspicious features so I'm wondering why they want a biopsy? She is anxious beyond belief and crying all the time. I thought this type of sarcoma was rare in younger women? Still no results two weeks on! 
    so very scared 

    x

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    Hi, 

    I know exactly how you feel, daughter had a hysteroscopic partial resection of a fibroid two weeks ago. Reason being concerns over it's rapid growth. MRI showed no distinct suspicious features so I'm wondering why they want a biopsy? She is anxious beyond belief and crying all the time. I thought this type of sarcoma was rare in younger women? Still no results two weeks on! 
    so very scared 

    x

  • Offline in reply to jujo6464

    Oh my gosh! Sending so much love to your daughter! I have not been offerend any scans MRI's ect they just went straight for the biopsy so now Im so scared as I truly believe I possibly just had endometrios! How old is your daughter if you dont mind me asking? Im 25 so Im hoping on the fact im abit younger and its alot rarer in younger woman! Ive cried so many times and I feel pretty alone, just hoping I get sometime back on wednesday! Fingers crossed good news! Sending much love xx

  • Offline in reply to Diamondxox

    Hi, 

    thanks for your reply. My daughter is 34, so young too. It's truely awful waiting isn't it? I hope you get good news too, 

    the waiting and not knowing is the worse.

    xx

     

  • Offline in reply to jujo6464

    I think the waiting is the worst bit! I mean good or bad news its coming but the wait is the scariest bit! Ill keep you updated after they call tomorrow! I dont know if the wait is up to diff hopsital but im in the north east if that helps at all! Hope your daughter gets good news too! Sending much love to you all! Keep me updated with your daughter if you can xx 

  • Offline in reply to Diamondxox

    Hi, 

    yes I will update you on my daughters results. Fingers crossed for you.

    xx

  • Offline in reply to jujo6464

    So they called, unfortanlty no news.. she said shes spoke to the pathologist - its been sent off somewhere else and they said all they can say is asoon as they get them back I will either recieve a phone call or a letter God im so stressed! They went from telling me there was absolutely no chance of a phone call and results would only be by letter.. wether that be a appointment follow up by letter or negative results.. to we will call you or a letter!? But im hoping its been sent off to just double check that it is negative? I dont know.. the awful wait continues.. I feel like im being paranoid and everyone keeps saying just wait it will be fine, and I get that - I know the nhs is struggling -I feel like im going crazy but its all I can think about 

    xx

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