Cancer Research UK main site
  • Replies 5 replies
  • Views 545 views
  • Users 0 members are here

So scared and not coping

CG313
Offline

2 months of bladder/abdominal and back pain plus microscopic blood in urine and increasing frequency of peeing led to referral to vagues symptoms clinicand CT scan that showed density over ureter. Urologist thinks it is not a kidney stone. Booked in for uteroscopy as allergic to CT contrast. Weeks of waiting.  Very scared that this is bladder cancer and I can't think of anything else. Pain worse Anxiety off the scale and have a disabled daughter also waiting for a serious operation. I'm 63. I think I need something to lessen anxiety and pressure on my family..life has stopped!  What would you recommend? 

 

  • Offline

    Hi Cg 

    im sorry that your feeling like this I had breast cancer last year the waits are agonising I really hope you find out what's going on soon while  I was waiting I asked my gp for a low dose anxiety calming tablet as I couldn't cope she agreed and gave me 7 days of 2mg diazapam these really did help it stopped the stomach churning 

    I wish you all the best in here if you need a chat 

    big hugs lovesra ️

  • Offline

    Hi I'm sorry to hear you're in a similar boat to me and I'm sure there's lots more, I'm waiting in biopsy results I missed the phone appointment the other day and they've rearranged it by text for next Friday.. I couidnt cope with heating the results esoexhally as they arranged fir a CT scan when I was at the breast unit the Dane day I had biopsy. I'm allergic to iodene and rang to tell them like they ask you too, but was told to go for the scan anyway and do it without the contrast dye. They saud they can't do it as they spoke to my consultant who I didn't know I even had at this point and want to rearrange for me to have some medication and lots of doctirs at my CT scan .so I've not had any news from that yet. I don't want my biopsy results without knowing if it's spread or not I can't cope as I'm sleep deprived and I also have a disabled child a son who friends in me 24/7 unless I can be treated then I don't want to know at all. My son also like your daughter might have to have spine surgery as he's developed scoliosis and we've not seen the consultant yet , 4th April... It's all very well doctor giving meds fur anxiety but just can't take anything cause caring for our child . I really do understand how you're feeling xx

  • Offline in reply to laraj

    Thank you so much for your reply. It really helped. The waiting is so awful. I feel so guilty that I am putting my family through this too. I have rung the doctor this morning for a call back. 

  • Offline in reply to spiritlove

    Thank you  so much for replying. It sounds as though we are in similar positions.  The worry of needing to care for someone else adds to it all doesn't it.  I hope you also get some news and some help soon. I'm going to try telling the GP how I am feeling. 

  • Offline in reply to CG313

    Yes it's heartbreaking especially when they are your world xxx 

    I noticed in the post above you mentioned feeling guilty family, that's exactly how I feel..my susterwho is 3 years older than me also has her health problems, she's trying to take over my son's care which isn't easy, we are both diabetic , she lives with our parents, I'm stopping with them to with my son, my son's dad is at home and he suffers with health anxiety and helping practically, friending in treatment he will have to do the Nightshift with our son here at my parents, do my sister can get some sleep to do daytime, she also has to do the cooking, cause it's fresh cooking low carb etc for diabetes, she's got health appointments attend. My mum is 77 and although she's quite young fur her age the pandemic has taken it out if her a d made her fragile, my dad is 79 this year he has a swollen leg Bern like that for years he has COPD but again he still busy still making things, fixing things quite a young 79 year old but he's also getting depression as we've all been locked up shielding and still are ,plus there's my son's medical appointments 

     

    My dad had an appointment last week at the docs to look at his swollen foot etc and he mentioned to the nurse what was going on and that he's having to do all the driving, the nurse sayd I'm going to refer you your whole family for support, help with appointments, counselling over the phone, if any appointments can be done at home like dad's feet and we. All wear masks etc so they might offer you that too , I hope so , what's your daughter's disability if you don't mind me asking? My son has quad cerebral palsy,non verbal, epilepsy and now scoliosis and going through puberty! And I home school him. I'm 49 so I'm 50 in sept. 

     

     

     

Speak to a nurse

Quick links

Follow us

Registered with Fundraising Regulator (logo)
Cancer Research UK is a registered charity in England and Wales (1089464), Scotland (SC041666), the Isle of Man (1103) and Jersey (247). A company limited by guarantee. Registered company in England and Wales (4325234) and the Isle of Man (5713F). Registered address: 2 Redman Place, London, E20 1JQ.