Hi wiggedout, 

I had an elevated ca125 result of 75 and other hormone markers were elevated indicating a malignant teratoma - i have had an ultrasound, MRI and CT scan along with a gynae oncology meeting where I've been told that my mass (measuring 17x15x9cm) is suspicious and needs removed along with my right ovary and possiby more depending on what comes of my exploratory laparotomy - I've still been told I may have a benign teratoma but may also have a malignant teratoma but until its removed and biopsied there really is no definitive answer until then. Once you meet with the gynae team they will be able to offer you lots of reassurance, ive been told my surgery will be priority and with no delay (other than they delay of not having my CT scan until just last week because I was never referred for it lol but its done now). 

You're completely justified being worried about cancer but try not to let the thought consume you - im only 30 and had almost written myself off, looking at funeral plans etc then met with my surgeon who was like "don't worry, we have a plan now" and I left feeling like a weight was lifted. 

Hope you keep well and please keep me posted on how you get on - im keeping my fingers crossed for everyone in this situation xx

Hi Catherine-30 

Thanks for responding. It's somewhat reassuring to hear from someone going through similar. I'm a woman who likes a plan so being without one is what is making me stir-crazy! 
 

It's good to hear that your experience with your gynae team has helped settle things in your mind - I feel like after all the upheaval the past couple of weeks I'm desperate for someone to say something about what is actually going to happen. I'll obviously know more once I have the MRI back but at the moment I feel like I'm likely to be in your position ie that they're unsure re the category of the mass. 
 

My head has been jumping to extremes - don't think I'd even thought about a biopsy. 
 

Do you now know how long you'll wait until surgery? 
 

Thanks again for chatting. 
 

x

Hey,

Having a plan, especially from the people who can actually help make you better definitely helps - I know your pain about having no plan and being driven mad without it! I'm no control freak but with 2 kids and a full time job I need to have things in order for going off and potential treatment if required! 

I can promise you that once you speak to your team you'll feel how I do. My surgeon was so lovely, he was telling me that because my mass is very large is close to my spine and bowels which means it may have attached to other organs - 99% just slip away from the other organs like snow off a windshield and the other 1% are like ice and need a bit of help coming away but easy enough to do in surgery - no idea if you like analogies but when it was explained like that I felt better.

My surgery would have been this week but I wasn't referred for a chest and abdominal ct scan to assist with staging to make sure everything that was needed to be removed is removed so my surgery if all goes to plan could be next week. I'm so ready for this thing to be out of me, physically feel good but mentally I feel drained. 

Thanks for chatting, it feels so much better when you speak to others about this kind of thing, it's scary going it alone when nobody can relate. Hopefully your MRI results come back fast and similar to me you'll get your surgery ASAP xx

Hi 

I'm also 30 year old mom and experiencing some of the same symptoms as you. I can't really offer much advice as I have no diagnoses! 

Can I ask what you mean by urinary constipation? I've been having problems where I don't feel like I need a wee anymore, despite drinking. I've had a scan of my bladder and they said it wasn't emptying fully. I'm worried it's my kidneys! 

This is such a scary situation to be in, especially when you have children xxx

Thank you for sharing - really put me at ease to hear the process you've been through - sometimes it's just the unknown that's really daunting! 
 

I've had my MRI back - would appear the remaining question mark is whether I have a fibroid or a sarcoma . Doesn't look likely (to me) that'll be cleared up easily without some form of procedure ( GP agrees) but I'm crossing fingers Consultant will shed some light at end of this week.

I hope all goes well with your surgery. Please keep me posted - thinking positive thoughts! X
 

Hi - I understand entirely the anxiety, especially with kids. 
 

Re the bladder issues - yes my symptoms were the same - not being able to empty my bladder. Haven't had that more recently though. I was convinced it was my kidneys at the time but they didn't find anything wrong with them - which is what led to my initial US scan. It all went away after a while -   my biggest regret right now is not following it up when I should have so definitely keep pushing for answers if your body's not right! 
 

x