Raised ca125 - terrified

I went to my doctor about indegestion last week and they did some bloods. I have a raised ca125, and a scan booked for next week. I also have anxiety and ibs.

I'm in such a state. I never really thought about ovarian cancer and now it's all I can think about since the doctor called.

I feel sick, I can't sleep or eat properly. I've been crying most of the day everyday. I have a young son and am hiding how I feel from him as best I can. I making my husband very worried too.

I don't feel like I can cope. I know I don't know anything for definite yet but I'm terrified. Truly terrified.

I am worried my ibs made me overlook tummy troubles I get.

I know it's my anxiety making me worse but I don't know how to get through all of this. I'm not strong enough. I cry every time I think of what my son might have to go through.

  • Hi   l have had complex  ovarian cysts found during a colonoscopy,  for left sided abdominal pain bowel problems and weight loss.  After MRI, ULTRASOUND scans and repeated bloods. To see if they had shrunk/enlarged.  
    I had surgery l am post menopausal and it was worrying. The biopsies were benign and they have removed the extensive adhesions around the left overy making it comfortable. The adhesions were from previous surgery and I had been having pain for many years, the general surgeon said we don't operate on adhesions, but the gynaecology oncology specialist spent 4 1/2 hours removing them.                             It was a bigger op than l expected but well worth the recovery. 
    l hope you have your appointment soon

    Try not to Google as they only show worst results never ones like mine when all was fine, just solid enlarged cysts at an age when everything goes dormant. 
    My daughter had a big grapefruit sized cyst removed when pregnant it was full of fluid and she's been fine since. 
    take care 

    Susie 
     

  • Thanks for your reply Susie, I'm glad you and your daughter didn't have anything sinister. It's hard not to imagine the worst.

    I know from previous courses I've done on health anxiety, googling is not good. But i have been so I must stop.

    It's just all very overwhelming. The scan is Wednesday so a few more days of waiting.

    Thanks again, Kathryn

  • I hope it all goes well try to relax over the next few days l know it that it takes some doing. 
    susie

  • Hey, 

    I just wanted to reply and give a brief run down of my experience -  i went to my GP with ibs symptoms and she did a pelvic exam and felt a massive, I've had raised ca125, other raised tumour markers, ultrasound to find a large cyst (approx 17x15x9cm) in my right ovary, more blood tests and an MRI. Everything is pointing in the direction of a specific ovarian cancer and I'm attending the gynae oncology surgeon next week to discuss my surgery/treatment plan. Not eating and sleeping are absolutely justified in your situation, I was the same and ended up on a week of zopiclone to help me sleep (no shame if you have to ask for help from your GP...I have 2 kids and work full time so I needed the rest) - I now have my appetite back fully and my sleep is back to being as good as it was before all of this so I promise you when the shock of this begins to wear off you will start to feel like you again, you're allowed to be panicked but be kind to yourself, if you need to cry or scream or be alone then do it, whatever you need to help you through this. 

    As for your blood results, ca125 can be raised for a number or reasons so try not to fixate on the number (I did this and drove myself mad, convinced myself I was terminal, I was genuinely looking at funeral plans and my life insurance policy and absolutely destroying my mental health).

    You will absolutely get through this terrifying stage and things will settle for you. I wish you the absolute best and if you ever need to chat please give me a message xx

  • Thanks for sharing your experience. I really hope your appointment with the surgeon goes well this week.

    It's good to know you got some medication that helped from the GP. I'll definitely keep that in mind. I've never had medication for my anxiety (it's always been manageable) but depending on how things pan out I was thinking I might need to ask them for help. This just feels like too much for my brain.

    And I'm glad in your experience things do settle and you feel like yourself again.

    Thanks for your offer to chat xx