Lung cancer with no side effects

Hello everyone

We are in that terrible period that many of you will recognise between being given potentially devastating news by a Dr and having it confirmed. The whole thing came as a total shock and we'd love to hear any information that we could draw upon in the meantime.

Briefly, my wife who is only 53 and very active is slightly asthmatic (managed) but developed a shortness of breath (just for a day) so went to get it checked out. The Dr said her lungs sounded clear but did a "D Dimer" blood test in case there was a blood clot. We were contacted in the middle of the night by the 111 service to say that the test was positive so she should go to A&E to get checked out. She had an ECG and a further blood test which was still positive (not as bad though) and she was given blood thinners as a precaution and told to come back the next day for a CT scan. This was done on Saturday 21st and the Dr said that there were no clots but a very unexpected result with a 3 cm soft tissue mass at the top of her right lung along with enlarging of the lymph nodes. He said that the CT report would usually be specific if it was definitely cancer but they'd not committed to it although given the circumstances it was a strong possibility. He was also very nervous about the whole thing which scared us a bit.

She's been referred under the 2 week procedure and we really don't know what to expect next. We are hoping that it could perhaps be something else, less serious but worried that it may be lung cancer or worse, secondary to another area of her body.

We are devastated as it was the last thing we expected - she has literally no other side effects and has never been ill before. I came across the forum tonight whilst (regrettably) googling but wondered if anyone might have had any simiar experiences who might be able to tell us what to expect? 

Thank you

 

Steven

  • Hi,

    I'm sorry to hear of your wife's problem,  cNcer in the lung often shows no signs that it's there until the tumours start causing problems like wheezing, breathlessness or pain , she's lucky they found hers as soon as they did .

    I'd say the next steps would be a visit to the oncologist where treatment maybe offered , a biopsy too but that depends on if the tumour is easily accessible,  they may just decide to watch it and see .

    Good luck 

  • ElNaGu 

    Thanks so much for your reply. I'm grateful for any information or advice that we can get.

    I really hope that you are right and that it has been picked up early. We rang the hospital today and they said that the report (CT) had been received and would be reviewed by the consultant within 5 days, so probably by the end of the week. 

    This waiting is horrendous.....

     

    Steven

     

  • I hope I'm right too but try not to worry because if it is something sinister your in the right hands , a treatment plan is usually swift in coming forward and getting treatment underway , that's what I found anyway and even if they didn't catch it early enough there is loads of treatment out there it just means being on it for longer and maybe forever .

     

    Keep my posted. 

     

    Good luck 

  • Thanks again for your reassuring comments. We had some slightly better news today as an ultrasound was conducted (from a previous unconnected referral) where the ovaries, uterus and pelvis were checked with no abnormalities found - I guess it won't be as thorough as a CT or MRI but we're taking it as good news anyway - every little helps! 

    The next step is hopefully speaking with the consultant to see what he or she thinks of the mass that showed up on the CT scan. Fingers crossed.

  • Well that is good news a ultrasound will show general results so fingers crossed .

    I had to have a chest xray done during a recent stay in hospital because they thought I had pneumonia, I didn't but when I seen the oncologist at a later date he told me he didn't need to do a CT because the chest xray I'd had done showed the tumours in my lungs hadn't multipled so I still have 7 .

     

    I'll keep my fingers crossed for positive results for your wife 

  • Hi Spr123 

    I'm so sorry to hear this. Have you heard anymore? 

    I'm only going on my recent experience but they found a mass on my Moms left lung through an x-ray. She was referred for a CT then a PET scan followed by a biopsy. It all happened super quick. 

    It is so much easier said then done (we have just been through it) but try to keep calm and keep busy. I know exactly how you are feeling and it is so tough. Try to stay off the Internet but I'd you can't, stick to the NHS sites where information is current. 

    Wishing you and your wife all the best. Keep us updated if you want too. Here for support for you both. 

    Kind Regards 

    Mel 

  • Hi Mel

    Thank you for your comments and for sharing your experience. 

    I'm afraid there's still no meaningful update. My wife still feels completely fine but we are obviously suffering from the stress of it all. It's been nearly 3  weeks since the initial scare now.

    Since my last post she's had a CT scan on her abdomen (just over a week ago) in case it's elsewhere and they've taken biopsies from her lymph nodes via an EBUS procedure. We saw the respiratory consultant just under 2 weeks ago (before the scans) who said it would all depend on the results as to what happened. He was clear that they didn't know if it was cancer or not. He booked us in to see him on Friday this week but said he'd get us in early if the results were back before then. He hasn't, so deep down I'm hoping that is maybe because it's not so serious to warrant it (the results should have been back from the biopsy a few days ago now so I guess he'll know what it actually is). Hopefully that's not wishful thinking but I guess we'll find out in just over a day from now.

    Worrying times

     

    Steven

     

     

     

  • Just a quick note - I read the experiences that you detailed about your mother and it's exactly what we've been feeling too. So many cancer adverts, trying to stay positive but having dark thoughts come over you in waves etc, especially in a night. It's literally been the worst period of our lives. 

  • Hi Steven 

    I know exactly how you are both feeling and it is the worst time ever. 

    It's a roller coaster of emotions I found, one minute your doing ok then something pops in your head and that's it. 

    I really hope everything goes OK for tomorrow for you both.you will  e in my thoughts

    Best wishes 

    Mel

  • Hi Steven 

    Sorry to hear about your wife, it's very hard not knowing the unknown.. I myself was diagnosed in October with shortness of breath again they thought maybe a blood clot only to find after a CT I have a 5cm tumour wrapped round my airway and cancerous lymph nodes all down both sides of chest wall.. they have no idea when it started.. iv had 4 cycles of harsh chemotherapy and 5 sessions of radiotherapy.. it's just a waiting game to get my next CT and results but I can definitely feel a difference in my breathing but it still plays havoc in my mind how long will it stay away for before coming back again.. it's a terrible feeling but I hope with my heart your wife is okay.. 

    I had been in my 4th year remission from Breast Cancer and was delighted so this one was a shock as it's totally unrelated to the breast cancer..

     

    thanks for reading 

    One day at a time.. ️