I have the BRCA1 gene. Known this for over 20 years. Have regular check ups on breasts and ovaries/ fallopian tubes.
Had op to remove milk ducts from right breast a few years ago, ductatasia and consulaltant says cells were " turning" .
Had offers of prophylactic surgery but never had the support for my child who has autism, to go through with op and recovery. Ex was abusive Left a few years ago but still no emotional or practical support.
All educatioal and social care council services for my now teen , were pulled after lockdowns.
Genetics say I'm at age ( 52) to consider options of surgery .
Have regular ovarian pain on left side and a large fibroid found by gyaenecology and kissing ovaries that was missed 3 times on ultrasound as doctors only looked at left ovary and said all was fine, just a cyst.
Yesterday 2 lumps were found near where I had previous surgery and my glands in neck were swollen.
Now awaiting MRI appt
Feeling very alone and isolated with no family ( lost mother and her sisters to breast and ovarian cancer) and all others too busy with running their business.
Where I stay it is clqiuey and I don't feel welcome as a single mum.
A bit of reassurance would be welcomed.
