Hi EJK79,

Welcome to Cancer Chat. I understand this must be causing some concerns and I hope it's not long to wait before you get the answers you need.

Of course the specialist will be best placed to advise, and especially after any relevant results, but if you would like to talk to someone in the meantime then you are welcome to give our nurses a call. You can reach them on freephone 0808 800 4040 (Monday-Friday, 9-5).

Wishing you all the best,

Ben
Cancer Chat Moderator

Hi, I hope all has been well with your daughter, that she got some answers and recovered well from her issues and is enjoying life. I came to this post just now through a google search about my own health history. I have follicular lymphoma (and like your daughter, oddly, also severe asthma!) and over 30 years prior to the cancer diagnosis I was diagnosed with ME/CFS, aged around 13. I am open to the idea that the two are linked, whether my immunity was affected by whatever ME/CFS actually is, or whether both were more likely due to underlying dysfunction, or whether ME/CFS was a misdiagnosis and I was actually experiencing fatigue from the earliest stages of lymphoma (as my cancer is very slow growing and was very advanced at diagnosis). Of course they could both just be bad luck, but it seems fascinating to me and possibly important.