So far have had tongue (treated with laser excision 4.5 years ago, long delayed check this week but no problems) and prostate (ERT 18 mths ago and remain on 3 mthly drug treatment, but PSA going right way) cancers. 

Now symptoms of a pretty rare version. Early symptoms exactly match those given by NHS, yet those symptoms do not, according to my GP, match those which trigger a referral to a specialist. My request for a referral thus refused. No suggestion as to other possible causes. 

There are as far as I can tell no specialists in the condition in local or regional NHS facilities. 

Any thoughts as to what action I might take. Unlike last 2 occurrences I am quite fearful, verging on planning my own demise.

My own conclusion is to go private, I can at least afford it but the distances involved are considerable.

If diagnosis is as I suspect, could I then use this as "evidence" to obtain NHS treatment?

Big questions, sorry, any and all comments welcome.

TIA.