Worried about cervical cancer

So to start I haven't been diagnosed...

I've had issues for a around 2 years or so and seen the gp and discussed the issues I was having and we thought I was peri menopausal (I'm only just 38) I have pain, heavy periods, stomach issues and also been fatigued and having really bad migraines. The dr thought if we dealt with the migraines it would help everything else until they suggested having a coil fitted also might help. Two weeks ago I went to have it fitted and the dr couldn't fit the coil as there is a polyp in the way. She then referred me to the hospital under the 2 week "cancer pathway" I then saw the gynaecologist consultant 2 days later and he said it's not an 'average' looking polyp and wants it removing asap he also did the liquid thing they do on the cervix and it all turned white including the 'polyp' I'm booked in to have it removed and they have said they really need to do biopsies and will be sending everything off for testing. 
 

Sorry I've gone on, just wondering if anyone else has had similar and what the outcome was? 

Thanks for reading

  • Hi Grace,

    First of all, well done on persisting and getting checked out. It's always a worrying time when things don't go the way we presume. 

    Mine is a similar story. I've just turned 40 and been experiencing peri menopausal symptoms. 

    Earlier this year in May, I went to get my coil changed and had a smear at the same time. The nurse was worried about the look of my cervix and sent me on the 2 week referral also. I was seen by the colposcopist quickly and had biopsies taken. 

    My smear test came back clear so I really wasn't that worried but my biopsies came back cin 1, cin 2 and cin 3.

    I then went for lletz treatment in September. I heard nothing back until 16th December with a letter saying there were no clear edges on the sample from the lletz. I went back to see a senior colposcopist today who explained to me that the results have taken so long as the sample had to be analysed by 7 different pathologists. 

    Long story short, there are a few cells in the sample which they are not happy with, but too few to call it cancer but they are as close as it could be. 

    She has offered me another round of lletz but explained that I may need further lletz treatments after that. Her first option was a hysterectomy as she saw in my notes that I suffer with anxiety and this whole experience has really taken its toll on my body. 

    I'm constantly feeling ill, full of cold and flu and can't recover like I did. Having a hysterectomy means it's kind of over in one go...I know that's not exactly true, but if I have to keep going back for lletz treatments, I worry that my anxiety is going to take over again and I don't want to go back to that dark place. 

    They've been really supportive and told me I did not need to make a decision today but emailed me loads of information about hysterectomies so I can make my own mind up. 

    Anyway, it's not what you really wanted to hear, but I wanted you to know you're not alone in your thinking.

    Keep me informed. 

    Holzmar 

     

  • Thank you for responding...

    I want to hear all sides and the good the bad and ugly as they say! I'm sorry to hear you suffer with anxiety and hope they are treating you gently and taking this into account when the are treating you.


    I'm having to have general anaesthetic as the "polyp" is completely blocking the entrance of my cervix and bleeds on touch it's not one that is attached to a stalk either it is attached to 3/4 of my cervix so only a very small amount that isn't attached to it. 
    The consultant sent me a letter stating it was just a small polyp removal which was copied from one sent to my gp but when I had my pre op the nurse said the notes they have say they are removing a large "polyp" that they believe is also well developed into the womb and needs urgent biopsies along with the cervix needing biopsies.... I've had previous abnormal cells in the cervix and had a procedure done 8 years ago - my smear picked up cell changes without hpv - it's almost 3 years since my last one and the first time since having changes that I've waited this long although I believe the smears have changed in the last couple of years to only detect hpv or something :confused: 

    I'll be honest, I'm done having children so if they offer a hysterectomy I would take it. I know it's not as simple as that with going through early menopause but I'm sure I'd feel better than I do currently!

    Grace

  • When do you go in for op,  Grace?

  • This coming week, what a start to the new year!

    Hope you manage to have a good new year, keep me updated about how things go with with you :happy:

  • Hi Grace, 

    I'm facing the possibility of a hysterectomy for CIN 3 changes to my cervix and possible VaIN. You mentioned early menopause, but if they leave your ovaries you will not go into menopause. This may make things a little easier for you.

    I hope everything goes okay and I wish you a happy and healthy New Year 

     

     

     

  • [@KC4800]‍ I'm sorry to hear your going through a tough time too!

    I've been thinking I was going through the peri menopause and I think I would rather than then continue the way I am...

    Wishing you well and hoping you have a good new year x

  • Hiya sorry to hear ur going through all this. I had my hysterectomy March 21, after endometrial diagnosis, this op was so much easier then thought would be, I was hold 1 day after. I was already 5 years into menopause, but apart from abit of brain fog it hasn't been bad at all. Hope all goes well if this the route u go down. 

  • [@Mario11]‍ Thanks for your message, I'm glad to hear all has gone well for you.
    I keep trying to talk myself into that they are being overly cautious with everything happening so fast. I think because we found out the day before all this started that my partner was in remission from stage 4 cancer which we should be celebrating is why this has hit us hard with me then being sent on the cancer pathway the following day We should be in a happy place with his results but feel like we've been kicked in the teeth again!

  • Oh dear so joy in one hand and sad in the other, must of been an awful moment for u both. I was diagnosed February had hysterectomy end march, brachytherapy by May..the ct and mri, the biopsy, blood tests everything was like a whirlwind, but gave me no time to think about things which looking back now kind of helped.

    As uve already been through all this with husband least you know they are doing everything they can, I took every bit of help, I was total stress head lol

  • I'm very grateful that it's been so quick (it would have been quicker if I didn't have problems with blood clots in the past) they had wanted me to go in the following day for the operation once I was seen but we have to make sure my blood is playing nice first. I'm glad to hear yours was quickly dealt with, are you currently NED if you didn't mind me asking?