CA 125 levels

I went to the doctor a couple of months ago because I was suffering regularly with diarrhoea and I was pretty sure I had IBS.

He ran full bloods and my CA 125 level came back as 57. He said to repeat that test in a month but he would only be concerned if the level goes up. I've checked the app for my recent results and this time my level is 56 and marked as 'Satisfactory no further action'

Everything I've read has said that over 35 should warrant more tests and that 99% of healthy people have levels under 35 which implies that there is likely something wrong even if not cancer.

I've booked an appointment for 2 weeks time, but really looking for advice on what I should say.

  • Hello Flyingelephants

    I'm sorry to hear that you've had some ongoing health concerns over the past few months. It's understandable that you may be feeling anxious particularly as you've had a raised CA125 and presumably your symptoms haven't resolved. You've done the right thing in making a further appointment with your Dr. 

    I wonder if you might find it useful to talk through your concerns with one of our nurses ahead of your appointment. I'm sure they will be happy to offer any advice and support they can along with help you think about some of the questions you might want to ask at the appointment. If you'd like to chat with them they're available Monday to Friday 9 am to 5 pm on 0808 800 4040 (excluding bank holidays). 

    I do hope that you get some reassurance and that things improve for you soon. 

    Best wishes, 
    Jenn
    Cancer Chat moderator