Recurrent mastitis & breast clinic referral

Hi all 

I actually posted a couple of years ago as I was having some problems with my right breast & needed to be referred to the breast clinic. My symptoms were thankfully given the all clear and I was just told the changes in my breast were because of my breast tissue. I had an ultrasound at the time, and there wasn't any cause for concern. I was only 23 at the time so a lot of it was put down to my breasts changing because I was young. I'm 25 now. 
I've recently had a baby (yay!), my baby is 4 months old & I am exclusively breastfeeding him. Since giving birth, I've had recurrent problems and mastitis, again with my right breast.
latch has been checked multiple times, positioning is good, tongue tie has been sorted, I can't really understand why it keeps coming back. 

I've been admitted to hospital for iv antibiotics and completed 4 rounds of antibiotics since & the mastitis never clears. It's never been an infected duct but always inflammation. There's not a big lump and no signs of an absess, I'm also not becoming super unwell with the mastitis, it just seems to constantly be there. The first time I was in hospital my CRP was really high & my septic markers were all raised. I was also having bleeding from my right breast (could see if I pumped) which was put down to the mastitis. 
I recently went back to the doctors as my mastitis wasn't clearing, my milk was tested which showed no bacteria in it that they needed to treat, so I was examined and referred for more tests at the breast clinic again.
My right breast has thickening, a slight red patch, but mostly it's the sharpness, burning sensation, pulling sensation especially when I feed (which isn't my let down as I know what that feels like), aching & it's really swollen constantly, and this pain that just doesn't seem to be going away. The pain is in the top and round the side of my breast (which is where the thickening is), and now into my armpit and down my arm. It's also itchy at times. Also worth saying I'm not having temperature fevers, but I have a lot of sweats, feeling particularly hot at night, when it's not actually hot in the room. I've also lost a lot of weight very quickly. I put these two things down to postpartum sweats & baby weight loss but my doctor isn't totally convinced. 
im just a bit concerned now as to why my right breast hasn't been right for a few years and now it's the breast affected again, and it would be good to hear from anyone who had similar symptoms or story, and what the breast clinic did? I have the breast clinic on Friday. Will they do another ultrasound and I've read about maybe a biopsy? But if it's just inflammation what would they even biopsy? My doctor mentioned cancer to me as something it could be, and although I really am thinking it's probably a type of mastitis that is just stubborn to what it's been treated with so far, i can't help but have that worry in the back of my mind.  
 

  • Hi there,

    I noticed your post and couldn't help but see some similarities with my own story (www.cancerresearchuk.org/.../persistent-breast-lump-after-multiple-duct-blockages

    Your mastitis was far far worse than mine has ever been; you have my sympathy! I also have a feeling of 'thickened' tissue rather than a defined lump,  although mine isn't particularly painful, just tender. There is some pain upon feeding - I can relate to this feeling of burning/pulling. How much weight do you mean by 'a lot'?  I realised recently that I lost about 4kg in~2months with absolutely no effort on my part. 

    I'm still waiting for my appointment to come through from the breast clinic and the anxiety is ruining my life. My main issue is that I've had this thickening for a few months and didn't go to see my GP sooner; I'm now living in fear that those months might be the difference between me beating cancer if that is what it turns out to be. Having not been to a breast clinic, I can't shed any light on what to expect,  but I fully expect it to involve an ultrasound and biopsy as you say.

    I really hope that both of us just have some persistent inflammation due to breastfeeding. Good luck for Friday - please do let me know how it goes. 

     

  • Hi Peanut_85

    so sorry you're going through this too. Reading your story definitely has similarities. Breastfeeding can have so many complications/problems can't it, but definitely a worrying time. The symptoms are really unpleasant aren't they. 
    I also have anxiety so completely understand how our minds can wonder off with us with our health, and im trying to tell myself it will just be tiny blocked ducts causing inflammation and pain etc rather than just a big blocked duct, however I can't shake off the worrying and that if that is the case why aren't the different kinds of antibiotics working on me & why isn't my milk infected. But I guess there could be an answer to that. It's also worrying me that even the first time I was admitted to hospital with mastitis, I never had an infected milk duct it was always inflamed mastitis, just worrying why it keeps happening and without a big clogged duct but always the thickening and inflammation in the same area. 
    Im quite nervous for the appointment if I'm honest, I've been before a couple of years back and my problem was just lumpier breast tissue thank goodness but I didn't have any of this. I hope they find out what's going on, I love breastfeeding my baby but recurrent mastitis is no fun and to get it sorted out would be amazing. 
    I'm not sure how much weight I've lost as I didn't weigh myself post pregnancy or even through my pregnancy, but I would imagine a fair amount recently. I wasn't really losing it that fast the first 3 months just very gradually but the past 3 weeks/month I've lost it fast, my clothes are baggier on me/falling down and my family members have noticed a difference. I'm like you, I haven't done anything different the past month, I snack a fair amount when I'm feeding so don't really understand how I'm losing it so fast. I'm not upset about it if it's normal I'd be quite happy but it's just how fast I am losing it now there must be a reason, but of course this could be down to anything. 
    really stressful you are still waiting. Have you heard anything yet? 
    I will definitely keep you updated, and thank you.  it's rubbish we're both going through this but at least we can support eachother on here. Xx

  • Hi simba1997,

    Thanks for your message and I hope that things are going OK for you. The anxiety got too much for me so I arranged a private consultation and I'm happy to say that there isn't anything of concern going on. In my case, it is probably just an effect of breast feeding causing normal changes in the breast tissue.

    I hope that they are able to help you on Friday to sort out your recurrent mastitis. I have a friend who also had recurrent mastitis and couldn't figure out the underlying reason; she made the choice to stop breastfeeding. You're doing so brilliantly to persist, but you might also feel it would be better to stop for your own comfort - there is no failure in that!

    Wishing you all the best for Friday. X

  • Hi peanut_85 

    so pleased to hear you got checked out and there isn't anything to be concerned about. Must be such a relief! 

    This is definitely an option if they really can't sort it out, but hopefully they can find the cause and fix it and I can carry on as usual. 

    Thank you, me too! x