Why does my cervical diagnosis keep changing?

I tested positive for HPV and abnormal cells at my routine smear examination which i was assured is fairly common and usually nothing to worry about. Luckily ive never missed one so i know thar 3 years ago my cells were all normal and HPV negative.

 

I had a colposcopy back in September and punch biopsies were taken and the nurse said the changes dont look concerning and very minimal which was a relief, but she wanted to take a few biopsies just to be sure as one area seemed “denser .

My biopsy results came back as CIN 1 and 2 which i wasnt expecting and i needed to have lletz treatment.

At my lletz treatments yesterday the nurse has told me i have CIN 2, not CIN 1.

Im just a bit confused why it seems to be different or getting worse at each appointment

Im now concerned the lletz results will come back worse.

What is the next step for CIN 2 after lletz if the results arent all clear?

This 4 week wait is going to be awful!

Thanks in advance x

  • Hello Anna55 and a warm welcome to Cancer Chat, 

    It's excellent that you never missed a smear test and this means that any changes can be tackled early and I am sure you are in very good hands to get this dealt with once and for all. 

    I completely understand why it left you confused that the nurse told you you had CIN2 and not CIN1 - perhaps this was linked to the fact that some of your biopsy results came back as CIN2. You could perhaps ask the nurse to explain to you why you were told you had CIN2 when you thought you had CIN1? It's unlikely I think that the LLETZ results will come back worse and I keep my fingers crossed for you that it all turns out to be OK for you. 

    Our nurses are available on this free number 0808 800 4040 if you would like to talk to them about any of this - their helpline is open Monday to Friday from 9am to 5pm so don't hesitate to give them a call. 

    I thought I would also mention to you [@Vicky_257]‍ 's thread on this page as she finds herself in a similar situation and has been told she is CIN2 and HPV positive so you two would probably have a lot to share at the moment with one another. The information provided by the nurse on Vicky_257's thread may also be of interest to you. 

    Waiting for results can be nerve racking and 4 weeks can feel like a lifetime. There are helpful tips in this article to help you cope while waiting for important news. 

    I hope that all this gets sorted quickly for you and that you will hear from the experience of others who have been in a similar situation. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

  • Thank you for your helpful response. It's so hard to try and stay rational when your mind is thinking of a million different outcomes! It's such a long wait but I seem to feel less stressed as time progresses as I can't control whatever the outcome is whenever the results may come. 

     

    Thank you for your help x