Vulvar cancer, terrified! Can anyone help

I'm going insane with worry. I can't stop crying and literally can't function. I have a small growth on my vulva, I assumed it was a skin tag so never told the doctor. Noticed it at the start of the year. Now 9months later it has grown bigger and is bleeding. I'm seeing the doctor tomorrow. But I looked down there with a mirror and my vulva has changed colour. It used to be pink but now it has really thick areas of white in multiple places. I just know there's nothing non sinister this can be. I'm falling apart. It wasn't like that at the start of the year, so in the space of this year it's changed colour and I've a growth. I'm terrified :cry:

  • I can see how frightened you are, but there could well be an explanation other than vulva cancer. Lichen sclerosus causes white itchy patches there for example. It's good that you are seeing the doctor, as they are the only ones who can advise and refer you if necessary. I hope it's not as serious as you think, and vulva cancer is a very rare cancer in young women, but I see from you other posts that you suffer from extreme health anxiety, so I appreciate you are going to assume the worst. Best just wait to see what the doctor says tomorrow-I hope you can be reassured. 

  • Hi

    Minska is right....it's best to wait and see what the Dr says. I know how difficult and frightening it is but please try and stay away from Dr Google. There are lots of different things it could be....a fungal, viral or bacterial infection, a skin reaction or lichen sclerosis like Minska suggested. 

    I'm recovering from vulva cancer at the moment so I'm here if you want to chat. Please let us know how you go on at the Dr's. 

    XxX

  • Thank you, I'm sorry you are going through this. I've read your previous posts, I literally typed "vulva" in the search bar last night and sat up all night reading every single post in this website. I suffer chronic health anxiety and can't stop myself obsessively googling. Every picture I look at the only thing that looks like what I have is cancer. Not to be tmi but it's thick white scaly, plaquey skin in a lot of places. It's not itchy. Also a wart like growth that I've ignored. I don't think there's anything else this can be. Sorry if I sound nuts. I'm really terrified to see her tomorrow. 
     

    Thank you for your kindness, I hope you are recovering and have got through treatment. This website has always been my biggest support when im anxious, just wish I could stay off google 

  • I don't think it's lichen as it's thick scaly patches that aren't itchy. I've trailed every dermatology site and gynaecologist pages and pictures that I can find. The only thing that looks like this is cancer. I know I need to try and be more rational, I just don't deal with these things very well. I thank you for your reply, I appreciate it 

  • It must be so debilitating to have health anxiety, and I do feel so sorry that you can't stop googling because that is the worst thing possible with health anxiety-everything will be bad news, and yet cannot diagnose you. It just frightens you. I'm not sure if you've had any help with this, but it would definitely be a good idea.
     

    I don't look at cancer pictures because I suffer from ptsd having actually gone through cancer twice now-I know it would be too triggering for me, so I do understand about fear-I just try not to increase my own. 
     

    I appreciate that you've already diagnosed yourself, so can I ask if you would believe a doctor telling you this was anything other than cancer? 

  • You don't sound "nuts", you are scared like anyone would be. It might be a good thing that it doesn't itch because mine did, like crazy!! My skin was constantly broken and bleeding because the itching was so intense and relentless. Are you up to date with your smear tests?

    Xx

  • Hi Minska, yes I've had therapy so many times, was seeing a psychologist, I'm on anti depressants and antipsychotics. It stems from a rough childhood, dad died when I was 14 then my mum got breast cancer not long after. It just left this deep rooted fear in me that I can't shake. I'm currently waiting to be seen by the mental health team again. 

    I would love her to reassure me tomorrow but I just can't see that happening 

  • I did have CIN3 but that was 10 years ago. I had my last smear a year ago and it was normal. I also had a lot of issues at the start of this year with agonising periods and minimal bleeding. I went private to see a gynaecologist who did an internal untrasound and said all was okay. I actually had the start of this wartlike growth back then and was cross with myself I didn't show him it. I'm not sure if gynaes check your vulva before they do internals or not, it would be just my luck that he didn't look and missed all these white patches :cry:

  • Oh gosh, you've had such a lot to deal with, it's no wonder it's left you with such bad anxiety and so frightened of everything you find that's unusual. It's very understandable. 
     

    I would have thought that a gynaecologist would have been checking everywhere to be thorough. Mine was cervical cancer so I've had lots of investigations in that department, though never an ultrasound as that's not typically used in coming to a cervical cancer diagnosis. 
     

    Maybe the wart like growth is just that-a wart? Low risk strains of hpv cause genital warts and it is possible to carry more than one strain of this virus-the high risk strains cause cervical cell changes such as the CIN 3, which are not cancer.

    I really hope you get reassurance tomorrow, or a referral to gynae if the doctor feels that's required, and I hope you'll let us know how you get on.

  • Smoore921

    Hi Smore921 

    I can totally relate to your post. I was diognosed in 2012 by a lady gp with lichen serouses,.I was prescribed a steroid cream and was told it had to be kept an eye on,as it could turn cancerous.  Lichen serouses causes you to have an itch, that drives you crazy,its a skin condition. Anyway no one really kept an eye on it,apart from me asking for more of the steroid cream when I needed it. In 2019 I to like you noticed it  didnt look  normal ,small raised lump,and looked white . So back I go to see another gp,a male this time who said,there's nothing to worry about  it's just a skin tag. I said are you sure,as it doesn't look like a skin tag to me, but he said trust me  it's a skin tag. Anyway fast forward to may 2020,I found a lump in my breast,turned out to be breast cancer.i had a lumpectomy and all my lymph nodes were removed from under my right arm as it had spread to my lymph nodes.  I had to have chemotherapy, and during chemotherapy the area on my vulva started to bleed,only a small spot of blood ,so I told the chemotherapy staff and my oncologist, and they were not concerned  told me chemotherapy can cause these sort of things to happen.  Got through that,had to have 15 sessions of Radiotherapy, and it started to spot of blood again. I thought this isn't right, so back I.go to my gp. Was sent to a gynecologist, who asked me back to have a biobsy on my vulva. After a 10 and half weeks wait,I finally got told I'd been diognosed with Vin 3,pre cancerous cells. Gynecologist didn't want to offer any treatments as it was such a small.area,but he just wanted to moniter it. I was then sent to a dermatologist, who prescribed imnigroid  cream, but it was prescribed wrong, told to use it three times a day and it should of been3 times a week ,and it caused me to be so sore.  Went to see another dermatologist, who was shocked at how wrong it had befn prescribed  and  at how sore I was, it actually caused me ulcers 12 in total and pitted holes in my skin. I was prescribed a wash cream and told not to continue with the imngroid cream untill I was healed,and then we would discuss using it correctly . I also had another biobsy on the opposite side as there was  another area they were concerned about  but that came back as normal skin thank goodness , but dermatologist had said the vin 3 was still there a lot smaller and that it had improved a lot  Anyway inbetween this I had another appointment with the gynecologist, but didn't get to see the one I'd seen before as he was away. And he told me a week after seeing the dermatologist, ( who had said the vin 3 was much smaller but still there)

    the gynecologist said it wasn't there only a week after I'd been told by dermatologist it was there. 

    So confusing . But I'm.still being monitored, and have bern told I will be for a number of years,I've been checking and it now does look greatly improved,think it could actualy have gone. 

    But it is a scary time ,but im so thankfullyl it's not actually turned cancerous.  I'm praying yours isn't too,but the way you described your problem,it sounds a lot like mine. I do hope you get some answers soon. Good luck and do let us know on here how you get on.x