Distraught today….

Hello. I've posted a couple of times here about my mum.

she has lost a lot of weight recently and has had bloating and pelvic pains. She's waiting on results for ca125 and on list for ultrasound.

we bumped into her freind she hadn't seen for a while at lunch  and she auidibly gasped and asked if my mum was ok, shocked by her skeletal shoulders and arms, this time 9 months ago my mum was chunky and a size 18 now she looks like she has no meat on her.

I got home and burst out crying as I know all these symptoms don't look good and her little shoulders and arms and legs look terribly small with skin all hanging too.

 

I know we just have to wait but I'm starting to feel so distressed and upset I don't want to carry on myself as the thought of possibly loosing my mum I wouldn't be able to cope. 
 

Im desperately trying to find something/anything else this could be but I keep coming back to the same thing. 

  • If anyone here would be able to help I'd very much appreciate it x

  • Hello Nina

    I'm sorry I can't comment on anything medical as I've no knowledge, but wanted to let you know that someone is here!  I totally understand your anxiety + worry.  Don't give up on 'phoning the hospital or department where Mum's ultrasound will be done - you could maybe ask if they have a short notice cancellation list she could go on, or if there is more than one site in your health board, tell them you are happy to attend anywhere.  I don't know your situation, but it is also possible to self pay for a private ultrasound - I developed major health anxiety after partners cancer diagnosis, and worried pain I had wasn't 'just the menopause' so went private. Wasn't cheap (£200), but got it within a week.  
    Waiting is torture (& Dr Google doesn't help, as it takes you down too many dark holes). Try to look after yourself as well as Mum. Keep calling for a cancellation slot (they do sometimes come up - we got a cancellation at days notice for my partners scan).  You are actively seeking to get to the bottom of this + that's a good thing.

    Hopefully an appointment will come soon & you can start to move forward - I truly wish you both well.  This is a site that no-one wants to be on, but can be great for support.  Waiting is the worst thing.  Sending good wishes + hugs to you - you sound like such a loving daughter. Xx

  • Hello thank you for your reply.

    How did your private scan go?

    it has been a huge battle to even get her the ca125 as Dr didn't seem concerned by her symptoms which seems insane to me, she works as a receptionist in the medical centre she attends but still isn't taken seriously it seems. After my pleading and crying she asked the doctor where she works Dr about the ca125 and they agreed. This doctor also done an internal exam and couldn't feel any abnormalities which I guess is a good sign. 
     

    thank you so much for your kind messages xx

  • Hi

    Thankfully scan was fine.  It did help reduce my anxiety as I was becoming frantic with worry that something was wrong.  I Also had a private CT and get the results this week.   When we get to menopause age, I know crazy hormones can cause all sorts of aches/pains/weird symptoms, and throw stress and anxiety into the mix and you've a right maelstrom going on.  I'm praying all is well and paid privately as I was getting in a right state and needed reassurance and to feel I was taking action.

    It's maybe a good sign that GP doesn't seem too concerned - however you are, and that is what matters!  I totally empathise with you. Keep calling the relevant department to chase up Mum's scan, it's a 5 minute call and you may just stike lucky as, unfortunately with Covid still around, people sometimes have to cancel at short notice and they won't want slots going to waste.

    Sending you hugs & good wishes.  Xx

  • Hello.

    that is great to hear! I am sure your results this week will be fine but I'll cross my fingers anyway. Did you have weight loss too? Unfortunately due to taking a lot of time off recently due to stress and upset niether of us are in a financial position to even pay our mandatory bills (we live together) so have no chance for private. I'm not sure even where they would put her for the scan they're just so vague it's irritating but my mum doesn't want me to get involved as she hates 'being a nuisance' and she thinks I will kick off about waiting times/the way they are acting. So I do not have permission to get involved. I am in the medical field myself so have some understanding of what goes on and I feel like this is just too blasé for three red flag symptoms.

    I suffer from mental health myself and have never felt this distressed before I'm struggling to get up in the morning and just wish to sleep all the time to make the anxious knot go aware for a while.

     

    hugs and kisses also xx

  • Sorry forgot to say my mum has been going through the menopause recently and has been having the regular symptoms hot flushes etc but I haven't found anything regarding the weight loss xx

  • Hi Nina

    I wish I could give you a hug - you sound so very stressed!  I have lost some weight, but not a great amount + I've drastically changed my diet since my partner's diagnosis, not to mention the stress effect!  Is Mum eating the same - worrying can really impact appetite.  I totally get her fears of 'being a nuisance', I was raised to be almost in awe of doctors, teachers, etc and never to question them, but remind her that they're there to help + it's not being a pest to work together to get an answer, or to at least rule out things.

    I worry that I'll be dismissed as paranoid + hyper anxious after my partners situation, but I openly expressed my fear of what could be wrong & why.  My GP did bloods (including inflammatory and Ca125) - maybe because I was so distressed and said why.  Your Mum (& you) aren't being a nuisance, there's no use making yourselves physically and mentally unwell  when relevant tests could help.

    Would you be able to speak to her GP ahead of her appointment - not to ask any information, but simply to pass on specific concerns about symptoms  that you feel she may not tell them. The GP isn't breaking any confidentiality in that, you're just giving background.

    Good luck - you sound like you're being really supportive, I hope Mum gets an appointment soon.  

    Sending good wishes Xx

  • Hi again,:happy:

    sorry for the late reply I've been at work as hard as that is at the moment :(

    thank you a virtual hug is comforting too :happy:

    thank you, that is exactly how me and my mum feel too , like we are hypochondriacs! But if we feel something is wrong we know ourselves and it is better to push than just leave things 

    my mums ca125 came back today as 13 so in the normal range which is good. She will now continue to wait for the ultrasound but has also put on a waiting list for the throat camera thing to check that area. It is very stressful waiting for tests but as the ca125 is low and the doctor can't feel any lumps the doctor will start looking into other tests. So everything is a bit uncertain now, something is definitely wrong but I'm praying it is something not serious 

    hugs xx