I’m confused…

I've been going through investigations regarding ovarian cancer after a recent Ultrasound showed few abnormalities. The scan showed that my right ovary is enlarged and contains a heterogeneous lesion and appears to contain droppler flow within. I have free pelvic fluid and my endometrium is thickened (18cm). She was more concerned with my linning and explored endometriosis. 

I seen gynaecologist where biopsy was done. I was called days later as she said was unexpected given my age etc. I was told pre cancerous cells have been detected on her biopsy.  I then had MRI scan where shows contained & no obvious concerns of being elsewhere. I seen specialist today where she said tiny focus, and precancerous changes. She said treatment options would be having mirena coil then regular biopsies/ testing then regular reviews.

The other would be Hysterectomy but given I had heart condition & overweight it would be huge risk as well as only being 33. She seemed dead against idea of this right now.  

I've been going through this process for over two months of not knowing and been under great deal of stress with other things going on. I wish I asked more questions but just been overwhelmed like do I have endometriosis as my linning is so thick, in agony constantly, super heavy periods & Ive range of other symptoms which is what prompted me to go to GP 

im trying to make sense of what this means. This means no cancer? She kept making point of saying low grade and precancerous changes to cells. She also said I'm lucky to have been picked up as many wait then too late. 
 

 

  • I think I've commented on one of your posts before as I am on the same journey - only I was at the waiting for results stage when you got your ultrasound so about a month further on than you. You're the only other person I've seen on here that seems to have got a 'watch and wait' outcome. I am not a medical person but my understanding is that low grade pre cancerous cells are abnormal cells but not cancer and the low/medium/high referes to how likely they are to develop into cancer - so low means unlikely.

    I am not a medical person though and I would strongly suggest you ring your GP for an explanation of your diagnosis/treatment. I was thoroughly confused and rang mine saying I did not understand my results and did not want to consult google to try and make sense of them.

    My ultrasound  showed a mass on my ovary, fibroids and a thickened womb lining and I had hsyteroscopy, blood tests, MRI and CT scans.  I was told treatment would be either hysterectomy or if no cancer a mirena coil for the womb lining issue.

    My MDT meeting report asked for blood tests to be repeated in September and a further womb biopsy in 6 months (next Feb) - no cancer but abnormal cells

    Yesterday I received an appointment for December for a hysteroscopy to remove the fiibroids (fit the coil?) which will hopefully put an end to the daily struggles with bleeding etc.

    I would guess that you will also have a similar split - watch and wait on pre-cancerous cells but some form of treatment to help you with your ongoing suffering but as I say phone your GP and talk it through with him/her. There's no shame in asking for clarification. I asked for a telephone consultation and wrote down everything the GP said.

    Good luck, I wish you a good outcome