Taking double meds still in pain

Hay so about a year ago I had the worst pain in my right ovary I was taking paracetamol and ibrofen and was still doubled up in pain on the 3rd day I went docs they did bloods an ca-125 came bk at 49, had scan found cysts said it was pcos. I have fibroid's and endos as well thich were found a few yrs ago. So pcos was decided is what is causing pain. And it might be but now every few months just before I start I get this pain only in my right ovary it feels like maybe a cyst might be rupturing. Its so bad I take co-codamol and ibrofen and I'm still rocking and crying In  pain, it goes down my right leg and if I'm out when it happens I limp because of the pain. 

Now I know this could very well be a case of ruptured cyst but I also have other symptoms. My whole stomach is descended I look pregnant. My periods smell like death like a steak that's been left in the sun for week, it been like that for 2 or three years, yes I tell the doctors every time go they ignore me yes its different to how it used to be and yes I know how normal periods should smell, but this is another level and yes I've had BV tests. It's so bad that within 2 hrs of washing I can smell it though my clothes when moving about.

I get heart burn not all the time but enough  that I know it's more than I ever had before which was hardly ever,  like five times my whole life. Also I get a stabbing pain in my tummy. Not sure that's related though. I also need to pee a lot

So went back to docs recently and she asked for bloods again and seemed genuinely keen to help (which is unusual for me) my CA-125 was back down to 19 which is great but I'm still not convinced it's just pcos. 

So I guess my question/s are can the ca125 go up and down if it is OV? And can an internal scan miss cancer or can cancer be mistaken for cysts? 

Should I ask for an MRI just to be sure? Has anyone been fobbed of with other diagnosis and it been OV?

Thanks

  • Hello Vixx84

    I'm very sorry to hear about the ongoing health problems that you've been dealing with now for quite some time. It sounds as if your symptoms are really impacting your daily life and it's understandable that you're feeling worried. 

    A raised CA125 level can be caused by numerous different conditions including endometriosis, PCOS, ovarian cancer, and even pregnancy. I'm afraid that I don't know the answer to your question regarding fluctuations but it does sound as if there's some reassurance that the level has reduced back into the normal range. 

    It's unfortunate that you've not felt heard or supported by your GP surgery. You don't mention in your post if you've ever seen a gynaecology specialist. If you've not seen a Consultant, or maybe not seen one for a while, then it's worth chatting to the supportive GP that you recently saw and asking for a referral. 

    I really hope that you get some reassurance soon and that things can be improved for you. 

    Best wishes, 
    Jenn
    Cancer Chat moderator