Hello Subiedoo

I just wanted to wish you well ahead of your surgery tomorrow. I'm unsure about support groups although we do have quite a few members who have been through treatments for different oral cancers. 

Hopefully, the post-op results will bring some positive news. Keep in touch and let us know how you get on. 

Best wishes for a smooth and swift recovery. 
Jenn
Cancer Chat moderator 

Hi Jenn,

Thanks for you reply.

I have made contact with a local Head and Neck Cancer Charity and they were brilliant but thankfully I do not have cancer, although my mum died and started with oral cancer before it spread to breast cancer. My mum started with dysplasia and eventually had the neck dissection op because it returned and they couldn't remove it without major surgery.

I feel at best I can have this cut away but since I do not have the usual risk factors as habits of mine I do have a genetic link and wanted to speak to others possibly in a similar situation. How do I find out if there is a specific support group for oral dysplasia or is there not one that you know of?

Thanks very much

Hi Subiedoo,

Glad to hear you reached out to the local charity.

Unfortunately I'm not aware of a support group specific to this condition, and after a quick search online there don't seem to be any obvious ones showing up.

You could always see if your doctor knows of any local or national groups. Also sometimes there are groups on Facebook for support for specific issues.

All the best,

Ben
Cancer Chat Moderator