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Ovarian Cancer Checks

Ieonardo6100
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Hi everyone I guess I'm just here for a little bit more information and maybe reassurance if possible. 
 

I'm only 22 so I know the possibilities are much slimmer of there being anything sinister but this makes the doctors checking feel slightly more concerning. I've been having a list of problems basically starting with really irregular periods - lasting 20-35 days of heavy bleeding + then 30-90 days before getting a period again. Accompanied with lack of appetite, fullness after a few bites, bloating even when not eating, constant nausea, extreme fatigue, 15kg weight loss and some more issues 
my doctors have initially checked all my hormone levels and looked for PCOS which all came back clear but my GP felt a lump when she did an internal examination so referred me for an US which I got within 2 weeks. 
I had the scan on Friday and was contacted on the Monday to say they wanted to check CA125 and refer for an MRI as soon as possible as they've found complex cysts. I went for my blood test this afternoon so will wait for results from this to come back.
 

They've told me they try to get a gynaecologist appt within the 2 weeks if possible but I'm not sure how it actually works. Would I need to get my MRI first and then how quickly after the scan will the gynaecologist be able to tell me about the results and what their plan of action may be? 
waiting to get the scan is one thing but of course it's another then having to wait for results and I'm not sure how quick the the turn around is. 
 

I'm trying to be optimistic that if anything it is benign especially as I'm so young but my mother and both maternal aunts have had breast cancer and I have a number of symptoms I know are associated with OC so I feel this doesn't go well for me. 
I'm not sure if you would get all of those symptoms with a benign cyst/tumour either. 
 

Thank you if anyone can help me in any way I would be so appreciative of your time and kind words right now. 

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    Hi

     

    I thought I'd reply as you haven't had any yet... I am here as my mum is going through the same thing. She is however 57 and postmenopausal so there are some major differences.

     

    She started to have pain on the right side, loss of appetite, and feelings of being full. The Dr initially said its a bacterial infection and gave her antibiotics. Her symptoms improved slightly so I went back with her. The first Dr noticed 'something' on the right side of her ovary on US and referred her for the 2ww. We then did another one privately and a TV. This Dr said she has a prolapsed uturus and a 5cm complex cyst on the left yet her symptoms are on the right. She has had a MRI, CT and the CA125, and also had the FIT tests. Nothing else has shown up on these scans aside from the uturus issue and cyst. She is going in today for an appointment to discuss a hysterectomy and the cyst will need to be sent for biopsy in case it is cancer.  You are very young, so please try and remain positive and that many of these cases will not be cancer, especially in younger women. I had a lump in my left breast a few years ago, I am 32 now and was referred urgently, it turned out to be nothing and disappeared after a week or two. The waiting is the absolute worst- but do ensure you chase your GP and anyone else you have seen. My mum received a call from our local hospital to go and see a gynacologist - is your GP the one who has told tou to make an appointment?

Reply
  • Offline

    Hi

     

    I thought I'd reply as you haven't had any yet... I am here as my mum is going through the same thing. She is however 57 and postmenopausal so there are some major differences.

     

    She started to have pain on the right side, loss of appetite, and feelings of being full. The Dr initially said its a bacterial infection and gave her antibiotics. Her symptoms improved slightly so I went back with her. The first Dr noticed 'something' on the right side of her ovary on US and referred her for the 2ww. We then did another one privately and a TV. This Dr said she has a prolapsed uturus and a 5cm complex cyst on the left yet her symptoms are on the right. She has had a MRI, CT and the CA125, and also had the FIT tests. Nothing else has shown up on these scans aside from the uturus issue and cyst. She is going in today for an appointment to discuss a hysterectomy and the cyst will need to be sent for biopsy in case it is cancer.  You are very young, so please try and remain positive and that many of these cases will not be cancer, especially in younger women. I had a lump in my left breast a few years ago, I am 32 now and was referred urgently, it turned out to be nothing and disappeared after a week or two. The waiting is the absolute worst- but do ensure you chase your GP and anyone else you have seen. My mum received a call from our local hospital to go and see a gynacologist - is your GP the one who has told tou to make an appointment?

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