Waiting for more biopsies and MRI - Should I go private?

Hope someone out there can help. I found a lump 6 weeks ago, had breast clinic appt two and a half weeks later for mammogram, ultrasound and biopsy of suspicious lump and "chunky" lymph node in armpit. Went back three weeks later for expected diagnosis of BC. Grade 3 invasive ductal carcinoma Her2+. Treatment will be chemo and some other drug, followed by lumpectomy. I have 3 appointments w/c 22 August 1) MRI of breast area, 2) to see oncologist and 3) to have more biopsies of areas outside of main lump and another one of axilla node as the first biopsy showed only fatty tissue and they didn't have enough to run more tests. If it's another 2-3 weeks before the results come back, it will be 10 or 11 weeks since I found the lump, which the consultant told me has probably been there "quite a while" and is "very active". It's very scary and every week that goes by is another week of growth and spread. I'm considering getting the MRI and biopsies done privately or at least getting a second opinion privately about whether waiting another 4-5 weeks will make a difference. When they told me I would need more tests, I asked the BCN about the delay and she said a few weeks won't make any difference, but I'm not convinced. Has anyone taken the private route to speed things up at the testing stage but got treated by the NHS? Would really appreciate hearing from anyone. 

  • Hi,

    My mum is currently being treated for ovarian cancer which is slightly different. However, when we initially found out, we did do 2 of the scans privately in the hope it speeds things up. We still ended up having to re do the same scans on the NHS. This may vary dependant on hospital, type of scan etc.

    Anna

  • Thank you, Anna. I appreciate you taking the time to reply and sharing your experience. I'm sorry your family are affected by this awful disease. I wish your mum well. Take care of you as well xx

  • Hello,

    Sorry to hear you're going through this worrying time where everything seems so agonisingly slow, I'm in the same boat. A friend of mine did the same as Anna suggested and, much like her case, ended up having to re-do a lot of the scans regardless. I'm terrified too, having had confirmation that it is a tumour with a strong blood supply, I feel like every day it's just spreading whilst I sit here!

    Happy to keep in touch whilst we wait, so at least we're not alone in this. Xx

  • Thanks for getting intouch, LauraRose. I'm going to ring the Macmillan helpline later to see what advice they can give me. I like to be in control and sitting waiting is really hard. Would love to keep in touch, please. Knowing there are others in similar situations is really helpful. I'm following a couple of threads that you've posted on. Take care, big hug, Amy xx