Hi to anyone going through similar issues,
back in 2020 in 2021 I had uptake in the ileum (small bowel) the issue is still ongoing as far as NET is concerned.
a few years ago I dveloped a small lump on my lower eyelid margin which I left alone but over the past few months it started to splurge upwards and sideways, I saw my GP who said it was a simple benign lump. I had my follow up appointment for my optica pathway glioma due so though another couple of months and I would mention it then. after careful examintation with slit lamp and microscope I was referred straight to an adnexal oncologist at an eye hospital in london. A week later I had my appointment, again more close up inspections and special lenses on cameras also straight into CT scan alomng with blood tests. The oncologist said high probability of BCC (malignant) as loss of eye lashes on margin. she has transferred me because I have adrenal insufficiancy and will need supportive care for any surgery. ( The oncologist discussed Mohs procedure) I have looked at other threads talking about bcc but was wondering if anyone had one on the eyelid margin (lower lid) it looks like a pale lumpy bumpy snowman. Also peop are talking about some bcc's having roots, could someone explaine what they are. It is now over 3 weeks since I saw the oncologist and I am wondering what the average wait time is for surgery and do they always do a biopsy first. Some BBc's have links to NETS so I am in a big learning curve at the moment
thank you to anyone who can help with my questions and lots of love to you all out there with your worries.
HM xx
